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How a Young Boy Makes Sick Children Smile

This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…

Skin Care and Wound Management in Systemic Sclerosis

“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, watch Alexandria Crowe, R.N., explaining what happens to the…

10 Parts of the Body Affected by Scleroderma

Scleroderma or systemic sclerosis (SSc) is a rare autoimmune disease whereby the body produces too much collagen. The symptoms a person can present are widespread and many different parts of the body can be involved. According to the Scleroderma Foundation, these are the main areas of the body affected by…

How the Musculoskeletal System is Affected by Scleroderma

In this video from the Scleroderma Foundation, watch Dr. Jessica Gordon’s presentation at the 2016 Scleroderma National Patient Education Conference held in New Orleans in July. Find out more about the Scleroderma Patient to Patient Symposium happening later this month. The presentation Musculoskeletal Manifestations of Systemic Sclerosis focuses on…

Scleroderma Testimony: The Story of McCoy Penland

McCoy Penland was four years old when her mother noticed a sudden lack of energy and that her daughter was constantly itchy. It took the family three months for McCoy to be diagnosed with scleroderma. Five years later, McCoy is a good student, great soccer…

9 Ways to Motivate Yourself to Exercise

Exercising and keeping as fit as possible is encouraged for everyone. When it comes to scleroderma, exercise and physical activity are important to deal with the fatigue that may come from the disease. Here are nine ways to motivate yourself to get out there and start exercising, based on…

Explaining Shortness of Breath in Scleroderma Patients

In this video from the Scleroderma Foundation, we see Dr. Richard Silver’s presentation at the 2016 Scleroderma National Patient Education Conference held in New Orleans in July. Find out more about the Scleroderma Patient to Patient Symposium happening later this month. The presentation Scleroderma Disease “Why Am I…

9 Things You Shouldn’t Say to Someone With a Chronic Illness

It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…