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Bob Saget has been a fierce advocate for scleroderma for almost three decades, ever since his sister passed away from the disease. He’s been an integral part of the Scleroderma Research Foundation, where he’s currently a board member. MORE: How Bob Saget became involved with scleroderma. This year marks the…

Twenty-three-year-old college student Erhabor Emokpae from Maryland was diagnosed with diffuse systemic scleroderma in 2013. Although the disease has changed his life, it hasn’t stopped him from doing one of the things he loves most: making music. MORE: How to live your best life with a chronic illness. According to the…

Using cannabis or marijuana for medicinal purposes is a hot topic right now among patients and health practitioners. It’s regularly touted as a pain reliever for many chronic illnesses. According to the National Cancer Institute, here are some of the facts about medical marijuana and its suggested uses: It’s…

CellCept is a prescription drug made by Genentech that’s primarily used by patients who have had a liver, kidney or heart transplant. Used in conjunction with other medications like corticosteroids and cyclosporines, CellCept (or mycophenolate mofetil) helps to prevent the body’s immune system from rejecting the transplanted organ. MORE: Many scleroderma…

In this video posted on Boehringer Ingelheim’s Facebook page, Professor Chris Denton, consultant rheumatologist at the Royal Free Hospital in the U.K., talks about systemic sclerosis (scleroderma) and the importance of building trust between doctor and patient. MORE: Four tips for managing scleroderma on…

The public’s interest in essential oils (EOs) — their uses, benefits, and safety — has been on the rise for several years. The most common means of using EOs is through aromatherapy, which includes having a diffuser in your home and or carrying a personal diffuser with you. You’ll find…

If someone you love has been diagnosed with scleroderma, you may be concerned about how to best care for them and what you need to do to ensure they maintain a good quality of life. You will become an integral part of their healthcare team which may be challenging at times. We’ve compiled a list…

Ten-year-old Grace began experiencing symptoms of scleroderma in 2015 when she and her family were living in China. Grace was having a hard time brushing her teeth as she couldn’t open her mouth wide enough, and her mom began noticing changes in her daughter’s appearance. MORE: Wyatt the Warrior uses…