Social Clips

Social Clips

Scleroderma in the Kidney

“Dr. Christopher Denton, with the Royal Free and University Hospital in the UK, is an expert on renal complications in scleroderma and in this session he provides insights on its impact for scleroderma patients.” Learn more about scleroderma here: https://bit.ly/learnscleroderma…

Social Clips

What Will Help Me Breathe Easily? Is My Heart Involved?

In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, 2016, listen to: Prof. O. Distler : “Understanding lung problems” Dr. A. Cordiero and Dr. M. J. Loureiro: “HAP and the heart” A. Roennow: “Struggles with breathing” Learn more…

Social Clips

How Do I Cope with My Facial Changes?

In these presentations from FESCA at the Patient Congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, listen to Prof. A. Tyndall on “Changing Faces and Self-Esteem”, M. Sauvé on “Readjusting My Life” and S. Sandulescu talking about “My Story”. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

Social Clips

What Scleroderma is to Me!

Watch what scleroderma is for Jade Emeline and how it impacts her life. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

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Living with Scleroderma

Learn more about how it is to live with scleroderma. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

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Systemic Sclerosis: A Treatable Multi-System Disease

In this SRFCURE video, watch a webinar by Dr. Monique Hinchcliff, Director of Translational Research at the Northwestern Scleroderma program, discussing systemic sclerosis as a multi-system disease. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

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Inspire’s Community Of Rare Disease Support Groups

“In recognition of Rare Disease Day 2016, Inspire CEO Brian Loew introduces the stories of members of Inspire’s online communities for people affected by rare disorders.” Learn more about scleroderma here: https://bit.ly/learnscleroderma…

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Guidance on Medications Used in Scleroderma

In this video by the  Scleroderma Foundation, Greater Chicago Chapter, watch “Rebekah L. Hanson, discuss the medications used in Scleroderma”. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

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Last Week’s Hot Topic on Scleroderma

Last week’s hot topic on Scleroderma was about the In SSc Study, Pulmonary Fibrosis and Hypertension Linked to Right Ventricular Dysfunction written by Magdalena Kegel. The article talks about patients with systemic sclerosis (SSc) frequently developing problems in the heart’s right ventricle. This new study from the …