The European Scleroderma Trials and Research group (EUSTAR) and the World Scleroderma Foundation recently announced the launch of a scholarly journal dedicated to coverage of research and clinical data regarding systemic sclerosis (SSc) and related autoimmune and fibrotic diseases, called the Journal of Scleroderma and Related Disorders (JSRD). Read…
Social Clips
Dr. Paul Wolters, Director of Biological Research for the Interstitial Lung Disease Program at the University of California, San Francisco (UCSF) – “Emerging Therapies in Pulmonary Fibrosis: Their Relevance for Scleroderma Patients” will educate a broad audience on the diagnosis and importance of early management of scleroderma.
National and Worldwide Scleroderma Related Progress
In this video by the Scleroderma Association of B.C., watch “2015 SABC Conference – guest speaker Maureen Worron-Sauve”. Learn more about Scleroderma here: https://bit.ly/learnscleroderma …
Caregivers: Don’t Ignore Your Check Engine Light!
In this video of a session from the 2015 National Patient Education Conference, organized by the Scleroderma Foundation, Ginny Maril, PhD, focuses on the caregiving experience and warns of important signs which should prompt caregivers check their own engines. Learn more about scleroderma and keep updated on all the…
In these presentations from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, learn more about how you and your family can manage your systemic sclerosis together. Learn more about scleroderma here: https://bit.ly/learnscleroderma…
CREST Syndrome – Meet the Experts
Crest syndrome is one of more than 80 autoimmune diseases that affect 23.5 million Americans, of which 75% of sufferers are women. Learn more about scleroderma here: https://bit.ly/learnscleroderma…
In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, watch Dr. J. Lee talk about “Predicting the future with systemic sclerosis” and K. Fligelstone’s presentation about “A long life with systemic sclerosis”. Learn more about scleroderma here: https://bit.ly/learnscleroderma…
What You Need to Know About PAH and Scleroderma
Read the latest news about PAH and Scleroderma here: https://bit.ly/228r7YF…
Last Week’s Hot Topic on Scleroderma
Last week’s hot topic on Scleroderma was about the Research of Lung Fibrosis in Scleroderma Reveals High Levels of Antibodies that Correlate with Disease Progression written by Margarida Azevedo. The article talks about the study that was presented at the 4th Systemic Sclerosis World Congress in…
What Do We Know About Scleroderma Now?
In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, 2016, listen to the “What do we know about scleroderma now?” presentation by Prof. C. Denton. Watch Prof. C. Denton exclusive interview with Scleroderma News here: https://bit.ly/20H6oJ0 Learn more about scleroderma here:…
Recent Posts
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