Social Clips

In this FESCA video from the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, watch the following presentations: Dr. L. Kwakkenbos (NL): Coping with the everyday challenges of scleroderma V. Delisle: Do support groups help? Dr. J. Lee: Painful symptoms that cannot be measured…

Digital ulcers, or open sores on the fingers and toes that don’t heal, are common complications of systemic sclerosis. Approximately 30% of patients with systemic sclerosis have digital ulcers, most commonly on the fingertips or on the elbows due to taut skin or trauma. These painful…

According to the Scleroderma Foundation, here’s some scleroderma-related conditions you should look out for: 1 – Gastrointestinal Issues Individuals living with systemic scleroderma may grow some irregularities from the mouth to the anal canal of the digestive system and gastrointestinal tract. Also, thickening and fibrosis (or scarring) of the tissues…

In this FESCA video, watch presentations at the Patient Congress of the 4th Systemic Sclerosis World Congress in Lisbon about digital ulcers and calcinosis. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

The 8th annual Food Fight for Scleroderma benefiting the Scleroderma Foundation, Greater Chicago Chapter will be held on April 10, 2016, in Chicago. Learn more about scleroderma here: https://bit.ly/learnscleroderma Meet chef Jason Paskewitz who is joining the cause.   Meet chef Lamar Moore who is joining the…

In this FESCA video from the Patient Congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, listen to the following presentations: Prof. C. Denton: “The Hope of Systemic Drugs” Prof. J. Van Laar: “Considering Stem-Cell Transplants” A. Martin: “My Lung Transplant” R. Kanters: “My Stem-Cell Transplant” Learn more…

Last week’s hot topic on Scleroderma was about the Spotlight on the Ssc patient: Alice Martins Correia; Geneva, Switzerland, written by Nicola Whitehill. The article focuses on the amazing story of Maria Alice Martins Correia from Geneva, Switzerland. Alice is, without doubt, one of the bravest pioneering…

In this short clip, Dr. Hal Dietz, Professor of Genetics & Medicine and Director of the Smilow Center for Marfan Syndrome Research at The Johns Hopkins University School of Medicine, discusses medical research and the work of the Scleroderma Research Foundation. Learn more about scleroderma here:…

In this Scleroderma Association of B.C. video, listen to the scleroderma patients panel discussion at the 2015 SABC Conference. Learn more about scleroderma here: https://bit.ly/learnscleroderma…

In this kcmunda video, see how a young scleroderma patient spends her ‘chemo day’. Learn more about scleroderma here: https://bit.ly/learnscleroderma…