The Scleroderma Foundation has made an appeal for scleroderma patients to participate in a research study focused on assessing an internet self-management program. The request was made by the organization on their Facebook page while the trial will be conducted by the University of Michigan, with the collaboration of…
“My name is Katrina and I served in the British Army 1999-2004 as a Combat Medical Technician. Feeling ill with a variety of symptoms including increasingly severe Raynaud’s, it wasn’t until April 2008 that I was diagnosed with scleroderma. At that time my skin scored about 28 (that’s poor),…
In this Demystifying Medicine from McMaster University video, learn more about the causes of scleroderma. Since scleroderma is not caused by one particular factor but a combination of many, this video includes topics such as genetics, lifestyle, and environmental factors and their role in this disease. Learn more…
https://www.youtube.com/watch?v=rEvprXIVQh8 In this Scleroderma Foundation Ohio video, watch this “talking” dog tell you all about the walk for a cure for scleroderma at the Family Fun and Dog Walk in Lebanon (Greater Cincinnati) Ohio on June 25, 2016. Learn more about it and register here: http://bit.ly/21S3Gm4 Learn more about…
In this Demystifying Medicine from McMaster University video, learn more about diseases associated with scleroderma, specifically pulmonary diseases including fibrosis. Learn more about scleroderma here: http://bit.ly/learnscleroderma Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment.
A 24/7 on-line scleroderma support group and discussion community with members and patients from all over the world. In this Inspire platform you will have more than 22,300 members telling their stories, clarifying their question and supporting other. Join the conversation here: http://bit.ly/1rEhjsA Learn more about scleroderma here: http://bit.ly/learnscleroderma…
According to the John Hopkins Scleroderma Center, one of the early symptoms of scleroderma is the fingers becoming sensitive, they have a tendency to change color when exposed to cold weather or if the patient is suffering from emotional stress. This is called Raynaud’s phenomenon. This condition is common and…
The Scleroderma Foundation announced the “Patients as Partners” program intended to help the scleroderma patient community partake with pharmaceutical and biotech companies working on clinical trial designs and other drug development initiatives for scleroderma and related conditions. Learn more about ‘Patients as Partners’ here: http://bit.ly/24xwYvl Learn…
According to the John Hopkins Scleroderma Center, one of scleroderma’s early symptoms is Raynaud’s phenomenon. In this atar212 video, watch the phenomenon happening in real time. Learn more about scleroderma here: http://bit.ly/learnscleroderma Scleroderma News is strictly a news and information website…
In this European Medical Journal video, listen to the podcast about “Innate Immunity in Systemic Sclerosis – Role of Toll-Like Receptors, Interferon, and the Potential Impact of Vitamin D”. Learn more about scleroderma here: http://bit.ly/learnscleroderma Scleroderma News is strictly a news and information website about the disease. It does not provide…
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