Project Scleroderma: Beneath The Surface from Project Scleroderma on Vimeo. Project Scleroderma: Beneath the Surface has recently gained popularity, it was presented on the Oprah show and is highly anticipated by the scleroderma community. But what is this project and how was it started? Christy McCaffrey lost…
In this 2012 video from the Scleroderma Foundation, learn more about disability benefits from Jennifer Louise Fry. Esq. “Get information and insight into how the Social Security Disability process works from an attorney who specializes in disability law.” Learn more about scleroderma here: http://bit.ly/learnscleroderma Scleroderma News…
Bob Saget is a well-recognized comedian, TV host, and actor. But what one might not know is that he is also an advocate for scleroderma. Bob Saget is currently a member of the Scleroderma Research Foundation’s Board of Directors. While his sister died from the chronic and incurable disease…
In this 2012 video from the Scleroderma Foundation, learn more about overlapping conditions in systemic sclerosis by Tamiko Katsumoto, M.D. “In many cases, scleroderma patients may experience clinical features of other autoimmune diseases, and these patients are considered to have an “overlap syndrome”.” Follow the latest scleroderma news…
In this video by the Scleroderma Foundation, listen to Dr. Janet Pope’s session during the 2015 Scleroderma Foundation National Patient Education Conference in Nashville, Tennessee. “The workshop discusses itching, pain, gut problems, Raynaud Phenomenon, and other symptoms many people suffer with due to living with scleroderma. Practical solutions to the pain…
According to the Cleveland Clinic, although scleroderma may be similar in adults and children, there are some specific characteristics that are more pronounced in children. Pediatric scleroderma is divided into systemic and localized diseases, which is further differentiated into subtypes based on clinical findings of skin involvement.
In this video from a lecture at the 2015 Scleroderma Foundation National Patient Education Conference, learn from Dinesh Khanna, MD, MS about “the gut involvement (also called digestive system or gastrointestinal involvement) in scleroderma and how it can affect up to 95 percent of people suffering from the disease.”…
The Scleroderma Education Project is a non-profit organization focused on providing up-to-date and comprehensive research-based information for scleroderma patients. As part of their ongoing research, they are compiling a short survey on blood types. This survey is directed only at patients who know their blood type and who…
It was October 2007 when Ann Havelock, who was 67-years-old at the time, started feeling that something was wrong with her body. What began with frigid hands, rapidly evolved to excruciating pain. But it took a year and a half and visits to half a dozen physicians to confirm her diagnosis. She…
Therapeutic plasma exchange (TPE) is a novel method for patients with scleroderma that may revolutionize the treatment of the disease and is considered a new hope for patients. The technique was recently presented at the American Society for Apheresis (ASFA) 2016 Annual Meeting in a presentation titled “Therapeutic Plasma Exchange…
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