Certain terms that a scleroderma patient will hear over and over from doctors, physicians, and even fellow patients can sound totally alien — at first. Here’s what some of those terms mean in everyday language, according to the Scleroderma Foundation. 1. Arthralgia “Pain in a joint.”…
Recently, the Scleroderma Education Project released guidelines for patients and doctors wishing to know more about therapeutic plasma exchange (TPE) as a treatment option for limited scleroderma. TPE is a procedure where the plasma is replaced by a plasma substitute. The main purpose of the technique is to remove potentially harmful circulating…
A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this video by the Scleroderma Foundation, listen to Dr. Janet Pope’s session during the 2015 Scleroderma Foundation National Patient Education Conference about “Scleroderma Symptom Management-Why, & What Can be Done?”.
According to the Scleroderma Foundation, while there is no proven cure for scleroderma much can be done to prevent, minimize, or alleviate its effects and symptoms. With this candid and emotional video, learn more about the harsh reality of living with diffuse scleroderma and the deterioration it causes from patient …
Throughout June, our resident blogger and scleroderma patient, Nicola Whitehill, posted daily information and facts about ‪scleroderma to celebrate Scleroderma Awareness Month. Read all Nicola’s Scleroderma Awareness Month articles here. In this SclerodermaWA video, watch three people sharing their stories…
In a recent news, we reported that a research team has developed a cannabinoid-based drug that stimulates not only one, but two, receptors believed to be involved in fibrosis development in scleroderma. The drug, VCE-004.8, prevented the formation of fibrosis-promoting myofibroblasts in culture and stopped fibrotic changes…
Bob Saget is a well-recognized comedian, television host, and actor. But do you know that he is also an advocate for scleroderma? In fact, Saget is a member of the Scleroderma Research Foundation’s board of directors. Though his sister died from the chronic and currently incurable disease, Saget’s journey with scleroderma…
Exercise and physical activity are important to deal with the fatigue that may come from scleroderma. Too little activity can make fatigue worse. In this Jason Dougherty’s video, learn more about a study on the effects of aerobic exercise on muscle endurance training for patients with scleroderma.
According to the Scleroderma Foundation, here are some scleroderma-related conditions you should know: 1 – Gastrointestinal Issues People with systemic scleroderma may experience some digestive system and gastrointestinal tract irregularities that range from the mouth to the anal canal. Thickening and fibrosis (or scarring) of the tissues may happen because of…
In this Boehringer US video, learn more about systemic sclerosis, also known as scleroderma. According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. …
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