According to recent reports, a satisfying marriage or long-term domestic relationship helps ease depression in women with systemic sclerosis compared to single woman with disease-related symptoms of depression. But do you know the complex science of depression? In this video shared with AsapSCIENCE, you can learn more…
Social Clips
Faces of Scleroderma
In this uplifting video “I ♥ My Scleroderma Sisters” shared by Sharon Esposito, we see the faces of the disease in all colors and ages. All of the women sent Sharon a picture of themselves after she requested help to make the video for World Scleroderma Day 2016 in…
Scleroderma: Farah Khaleck’s Story
https://www.youtube.com/watch?v=A9qzbScw4Gw In this K24TV video, meet Farah Khaleck who was diagnosed with scleroderma just after turning 17 years old. According to the Scleroderma Foundation, while there is no proven cure for scleroderma much can be done to prevent, minimize, or…
5 HSCT Articles You Can’t Miss
1. HSCT Seen as Superior to Current Therapies for Severe, Progressive Sclerosis “Autologous hematopoietic stem cell transplantation (HSCT), evaluated in 18 people with rapidly progressing systemic sclerosis, found the experimental therapy superior to standard treatments for the disease for this patient population.” 2. Spotlight on an Ssc Patient and…
5 Misconceptions About Nutrition
A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this Demystifying Medicine from McMaster University video, learn more about five common misconceptions when it comes to food, nutrition, and healthy living. Back in 2015, a study demonstrated…
Recently researchers identified for possibly the first time a case featuring simultaneous watermelon stomach and watermelon colon. In other words, both organs displayed the appearance of gastrointestinal lesions that resemble the stripes of a watermelon. Gastrointestinal symptoms are common in both limited or diffuse cases of systemic sclerosis.
It’s always good to know that we are not alone in our struggles. Did you know that the Scleroderma Foundation has more than 30 chapters throughout the U.S. —  and you can help it grow more? Here you can find a list of all chapters and ways to…
In this Gifted Life video, several transplant recipients answer the question: “If you could talk to your donor, what would you say?” Hear emotion filled answers that come with great gratitude for donors who gave the gift of life. Back in 2015, human stem cell transplantation…
10 Ways to Stay Hydrated
The human body depends heavily on water as organs, cells and tissue all need water to function correctly. It’s important to remind yourself to constantly stay hydrated, especially on hot days. Staying hydrated is a big part of being healthy. A healthy diet does not cure scleroderma but nutrition…
Scleroderma: What is an Autoimmune Disease?
In this Demystifying Medicine video from McMaster University, learn more about what an autoimmune disease is. Looking for more facts? Here are 10 Autoimmune Facts and Statistics “Autoimmune diseases cause your immune system to attack healthy tissue and cells instead of harmful substances.” Learn more about…
Recent Posts
- Dexamethasone reduces inflammation, scarring in SSc mouse model: Study
- Survival improves for SSc-PAH patients on combination therapy
- Combination drug therapy boosts lung, skin health in SSc patients
- On choosing medicine’s side effects over scleroderma progression
- Telerehabilitation improves hand mobility in scleroderma women
- Molecular pathway ID’d as key driver of scarring in scleroderma
- Limited hand function disrupts daily life for people living with SSc
- Coping with loss is part of living with scleroderma
- CAR T-cell therapy eases SSc symptoms, early trial data show
- Milk-derived particles may offer treatment path for SSc fibrosis