It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…
Gentle exercise can be beneficial to scleroderma patients and yoga can be a perfect fit for because of its low intensity and slow-paced comfort. In this Scleroderma Foundation video, watch Sundar Balasubramanian, Ph.D talk about basics of Yogic Breathing both in theory and practice…
Vivian Stephens is a make-up artist who was diagnosed with scleroderma in her teenage years. In this video, she shares some of her tips on how to look after dry skin if you also have the condition. Discover more tips on how to look after your scleroderma-affected…
In this Scleroderma Society of Canada film, we meet several scleroderma patients and rheumatologist Dr. Malette. Dr. Burt talks about hematopoietic stem cell transplantation (HSCT) and results of recent clinical trials. Find out more. The patients talk about when they were diagnosed, the symptoms they are experiencing and the…
Nutritious Sweet Potatoes Do you enjoy sweet potatoes? Did you know they’re a super food that contain many nutritional benefits? The World’s Healthiest Foods, list numerous benefits of incorporating sweet potatoes into your diet. Some of these health benefits include increasing your antioxidant intake, consuming more anti-inflammatory…
“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, wacth Carol A. Feghali-Bostwick, Ph.D., talk about features of abnormal…
Super Food Sweet Potatos Do you enjoy sweet potatoes? Did you know they’re a super food that contain many nutritional benefits? The World’s Healthiest Foods, list numerous benefits of incorporating sweet potatoes into your diet. Some of these health benefits include increasing your antioxidant intake, consuming more…
With winter just around the corner, it’s time we all started to look after ourselves a little bit more. Here are nine foods well-known for helping our bodies, based on information from prevention.com. But keep in mind, this is just a guide and each autoimmune patient has individual needs.
The Terranea Resort in Los Angeles, California is playing host to the unique Patient to Patient Experience Symposium. The three-day event will focus on the issues scleroderma patients face, including practical solutions to improve quality of life, promote positive health habits, and ways to prevent symptoms from getting worse. There…
According to the Scleroderma Foundation, here are some scleroderma-related conditions to be aware of: 1. Gastrointestinal issues People with systemic scleroderma may experience some digestive system and gastrointestinal tract irregularities that range from the mouth to the anal canal. Thickening and fibrosis (or scarring) of the tissues may happen because…
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