Eating well is essential for anyone who suffers from an autoimmune disease and getting into good eating habits for life will help you stay on top of your disease and better manage your symptoms. We’ve compiled a list of tips for eating well when you have scleroderma based on information…
When you are dealing with a disease or illness, your immune system is compromised, making it easier to pick up germs and bugs. While it’s impossible to live in a completely sterile environment, there are ways to try and minimize the amount of germs around your home according to the…
This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…
https://www.youtube.com/watch?v=Qjm_C7ZL05c In this video from Wochit News, researchers at the Hospital for Special Surgery in New York City have found what could be a potential new stem cell treatment to help slow down skin fibrosis in scleroderma patients. A review finds plasma exchange is an effective therapy for…
“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, watch Alexandria Crowe, R.N., explaining what happens to the…
Scleroderma or systemic sclerosis (SSc) is a rare autoimmune disease whereby the body produces too much collagen. The symptoms a person can present are widespread and many different parts of the body can be involved. According to the Scleroderma Foundation, these are the main areas of the body affected by…
In this video from the Scleroderma Foundation, watch Dr. Jessica Gordon’s presentation at the 2016 Scleroderma National Patient Education Conference held in New Orleans in July. Find out more about the Scleroderma Patient to Patient Symposium happening later this month. The presentation Musculoskeletal Manifestations of Systemic Sclerosis focuses on…
McCoy Penland was four years old when her mother noticed a sudden lack of energy and that her daughter was constantly itchy. It took the family three months for McCoy to be diagnosed with scleroderma. Five years later, McCoy is a good student, great soccer…
Exercising and keeping as fit as possible is encouraged for everyone. When it comes to scleroderma, exercise and physical activity are important to deal with the fatigue that may come from the disease. Here are nine ways to motivate yourself to get out there and start exercising, based on…
In this video from the Scleroderma Foundation, we see Dr. Richard Silver’s presentation at the 2016Â Scleroderma National Patient Education Conference held in New Orleans in July. Find out more about the Scleroderma Patient to Patient Symposium happening later this month. The presentation Scleroderma Disease “Why Am I…
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