In this Scleroderma Foundation, Greater Chicago Chapter video, learn more about the photopheresis and how it can impact scleroderma from Jaehyuk Choi, assistant professor of the Department of Dermatology and director of the extracorporeal photopheresis unit at Northwestern University.  Learn more about about…
Scleroderma is a rare autoimmune condition whereby the body produces too much collagen, which presents widespread symptoms in different parts of the body. Learn more about the main areas of the body affected by scleroderma. In this Scleroderma Foundation video, Janet Poole, Ph.D. talks about…
There have been many studies that have come to the conclusion that scleroderma patients are more at risk of contracting certain cancers. Lung cancer, lymphoma, breast cancer and skin cancer are some of the diseases which are most often cited as being of particular risk to scleroderma patients according…
Living with a chronic illness is never easy. When you get diagnosed with a disease that is going to be with you for the rest of your life, like scleroderma, you have to adapt to your new life. But how can you do that? What should you keep doing…
Despite there being approximately 300,000 people in the U.S. who have scleroderma, it seems that many people are either completely unaware of the disease or are confused as to what the disease actually is. With this in mind, we’ve compiled a list of common misconceptions about scleroderma so non-patients can…
It can be stressful when someone you love is diagnosed with scleroderma–you’ll be concerned and worried, and probably unsure what to do. We’ve compiled a list of useful tips to help you through those first few bewildering weeks so you can offer the best support to your loved one at this…
Scleroderma is a rare autoimmune disease that affects around 300,000 Americans. In this short video from SclerodermaSoCal, five women with scleroderma introduce themselves and talk about the Southern California Chapter of the Scleroderma Foundation and how much support they have received from the organization. Read our six…
In this video from the Greater Chicago Chapter of the Scleroderma Foundation, Jessica Mandac, PT, from the Rehabilitation Institute of Chicago Center for Pain Management talks about the benefits of physical therapy for patients with scleroderma. Exercise and physical activity are important to deal with…
Scleroderma is an autoimmune disease that affects approximately 300,000 in America. Many patients will suffer from tightening of the skin which can cause problems with mobility, particularly with the hands.  In this video from Jessica M shared in June 2014, 26-year-old Jessica, with the help of her cousin, demonstrates…
In this video shared by Susan Nyanzi, Bob Saget talks about the upcoming Patient to Patient Experience Symposium for scleroderma patients. Saget has been an active advocate for scleroderma since his lost his sister to the disease in 1994, serving on the board of the Scleroderma Research Foundation.
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