This video from FESCA taken at the fourth Systemic Sclerosis World Congress in Lisbon in 2016 shares two presentations dedicated to the progression of scleroderma and how it affects patients on a long-term basis. Discover six tips for eating well with scleroderma. First up is Dr. Jason Lee…
Exercise and physical activity is important for people with scleroderma, specially when it comes deal with the fatigue that may come from the disease, but over the holidays it can be difficult to find the time. With this in mind, we’ve put together a list of tips to help you find…
Sleep is important for everyone, and even more so for people who suffer from chronic illness such as scleroderma. Going without sleep can make symptoms of scleroderma much worse so it’s important to see your doctor if you’re having trouble sleeping. Sleep in chronic illnesses with a focus…
At the beginning of the year, a team of researchers developed a potential therapy for patients with scleroderma: an anti-scarring paste to help prevent the progression of fibrosis. The study focused on radiation dermatitis, a type of fibrosis that develops in about 95 percent of patients undergoing radiation therapy. The intense beam…
This month is Raynaud’s Awareness Month, and in this special article, our resident blogger and scleroderma patient, Nicola Whitehill shares her tips on how to better manage Raynaud’s during this seasonal change. Join her in “Show Your Colours For Raynauds Awareness.” 1. Don’t forget to take your medication It’s…
Elie Ramia was just three years old when her mother, Terry-Jo noticed a strange bruise on the back of her leg. After being diagnosed as eczema and then later, a birthmark, Terry-Jo accepted the doctor’s word and the family carried on as usual. 20 facts you should…
It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…
In this video from the Greater Chicago Chapter of the Scleroderma Foundation, we see a presentation from the Scleroderma Patient Education Conference held on October 15, 2016 in Chicago. Disease severity in scleroderma may be picked up on a blood test. Find out more. Dr. Shervin Assassi,…
In this Scleroderma Strong video from Jessica M., Jessica describes what scleroderma is and the affect it can have on the digestive tract. She then talks about how diet can negatively or positively affect a person with scleroderma and offers some practical advice about eating and diet.
In this video from the Greater Chicago Chapter of the Scleroderma Foundation, we see a presentation from the Scleroderma Patient Education Conference, held on October 15, 2016 in Chicago. PAH Medications Tracleer and Opsumit, seen to block fibrosis in scleroderma. Find out more. Dr. Dematte from the…
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