This animated video from Demystifying Medicine explains the complication of pulmonary fibrosis in scleroderma patients. It begins by sharing that 80 percent of Asian scleroderma patients suffer from some form of pulmonary disease and that it’s the leading cause…
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…
Scleroderma is a condition that causes hardening of the skin and, in some cases, some organs in the body. Although the medical term we use to describe the condition was only coined in the early 19th century, scleroderma is a condition with a long history. According to news-medical.net, there are records of its symptoms…
An Instagram account is using well-loved characters from children’s animated movies to create memes that highlight some of the issues people living with chronic illnesses face in their everyday lives. MORE: 15 signs that confirm you’re definitely a spoonie. As reported in The Mighty,…
This video from the Federation of European Scleroderma Association, in honor of World Scleroderma Day on June 29, features people in a staring competition to see who laughs first. Half of the participants have scleroderma and the message of the film is very simple, “Scleroderma will not take…
June is Scleroderma Awareness Month and throughout the month, we’ll be highlighting various ways organizations are raising awareness of the disease. Scleroderma Aware are using the month to try and get as many people as possible to sign their Scleroderma Aware Pledge. MORE: Find out some of…
For some chronic lung disease patients, their lung function declines so much that they need to have a lung transplant. However, it’s a complicated procedure and recovery can be slow. To ensure you have the healthiest recovery possible, you’ll need to adhere to a few basic rules, according to the…
While living with a chronic illness can be challenging, there are ways that you can make life easier and live a happy and fulfilling life. Establishing good habits and routines takes time, but as Gunnar Esiason points out in his blog Own It, there are some “common sense…
Trish Rainbow-Noack from New South Wales, Australia, first noticed something was wrong when chunks of skin began peeling off the back of her hands. After visiting her doctor, she was told she had lupus. Other symptoms swiftly followed, including chronic fatigue, the inability to walk far, not…
Scleroderma is normally classified as an autoimmune rheumatic disease. According to scleroderma.org, the name of the disease itself comes from the Greek language: sclero meaning “hard” and “derma” meaning skin. Together, they describe one of the most visible symptoms of the disease: the hardening of the skin. Scleroderma is a chronic connective tissue…
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