Living The Dream

DAY 5  Scleroderma Awareness Month DIAGNOSTIC TESTS Early diagnosis is crucial to prevent life threatening damage to the scleroderma patient. For, if the disease has progressed to a level causing irreversible damage, even a stem cell transplant or organ transplant (for the most severely affected patients), may not…

  The symptoms of Scleroderma can differ from patient to patient, with no two patients displaying the exact same set of symptoms. This makes diagnosis and treatment more challenging to meet the needs of the individual patient. In all types of scleroderma (see Day 1 of…

  Scleroderma is a systemic disease which can affect the entire body. This includes body organs, muscles, nerves, glands…. EVERYwhere! This makes for a very challenging time at tying to manage and control the symptoms, since there is no cure. The treatments available are symptom suppression agents at…

  Scleroderma is systemic and can affect the entire body, depending on the type of scleroderma present in the body. This can be identified by specific blood screening and other diagnostic tests — see later on in the week for more information on this! The entire body is…

Each day, here at Scleroderma News, for the duration of Scleroderma Awareness month, I will be posting daily information and facts about Scleroderma, which I hope will be of interest. An empowered, educated patient makes for a better “scleroderma journey,” as prevention is better than cure, and there…

  Wednesday is the start of Scleroderma Awareness Month, with the countdown to World Scleroderma Day, 29th June, fast approaching! To read my blog post about World Scleroderma Day, click here. Each day, here on Scleroderma News, I will be posting a different Scleroderma awareness…

The BSR held its annual conference recently in Glasgow. There were 3 sessions dedicated to Systemic sclerosis, scleroderma, over the duration of the 3day conference. Will Gregory, Ssc specialist physio, kindly shared his experience of day2 with Scleroderma News readers. To read the article, click here…

A Spotlight on the Ssc Scleroderma Symptom Hypopigmentation Sarah Jatto from Clapham, South London was diagnosed in 2009 with diffuse Ssc at age 19. Sarah has very kindly agreed to share her experience with the symptom of Hypopigmentation. ‘Hypopigmentation, also known as vitiligo, is something I…

DATE FOR YOUR DIARY: The webinar will take place on Wednesday, May 4th, 6:00pm London time, 7:00pm Madrid, 1:00pm New York City, 10:00am Los Angeles It gives me great pleasure to announce that Rareconnect have invited me to be a presenter at this forthcoming Webinar, along with Timo Söderlund, …

On Tuesday 26th through to the 28th of April, The British Society for Rheumatology held their annual conference, with this year’s venue being in Glasgow. Last year, it was held in Manchester, and I had the honour of being a presenter at one of the Ssc Scleroderma sessions. My presentation…