An Instagram account is using well-loved characters from children’s animated movies to create memes that highlight some of the issues people living with chronic illnesses face in their everyday lives. MORE: 15 signs that confirm you’re definitely a spoonie. As reported in The Mighty,…
This video from the Federation of European Scleroderma Association, in honor of World Scleroderma Day on June 29, features people in a staring competition to see who laughs first. Half of the participants have scleroderma and the message of the film is very simple, “Scleroderma will not take…
June is Scleroderma Awareness Month and throughout the month, we’ll be highlighting various ways organizations are raising awareness of the disease. Scleroderma Aware are using the month to try and get as many people as possible to sign their Scleroderma Aware Pledge. MORE: Find out some of…
For some chronic lung disease patients, their lung function declines so much that they need to have a lung transplant. However, it’s a complicated procedure and recovery can be slow. To ensure you have the healthiest recovery possible, you’ll need to adhere to a few basic rules, according to the…
While living with a chronic illness can be challenging, there are ways that you can make life easier and live a happy and fulfilling life. Establishing good habits and routines takes time, but as Gunnar Esiason points out in his blog Own It, there are some “common sense…
Trish Rainbow-Noack from New South Wales, Australia, first noticed something was wrong when chunks of skin began peeling off the back of her hands. After visiting her doctor, she was told she had lupus. Other symptoms swiftly followed, including chronic fatigue, the inability to walk far, not…
If you are active on social media and have a chronic illness, you’ve probably come across the term “spoonie.” The word comes from a woman’s explanation of how she has to manage her energy levels each day.  As she was in a cafe at the time, she grabbed a bunch of spoons…
One of our resident columnists, Nicola Whitehill, has been using Scleroderma Awareness Month to profile some of the people who live with the disease from around the world. MORE: Find out how you can support Scleroderma Awareness Month here. Writing on her own personal blog Raynauds…
Bob Saget has been a fierce advocate for scleroderma for almost three decades, ever since his sister passed away from the disease. He’s been an integral part of the Scleroderma Research Foundation, where he’s currently a board member. MORE: How Bob Saget became involved with scleroderma. This year marks the…
Twenty-three-year-old college student Erhabor Emokpae from Maryland was diagnosed with diffuse systemic scleroderma in 2013. Although the disease has changed his life, it hasn’t stopped him from doing one of the things he loves most: making music. MORE: How to live your best life with a chronic illness. According to the…
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