Wendy Henderson,  —

Scleroderma is an autoimmune disease that can affect any part of the body and internal organs, including the heart. In this video from the Scleroderma Foundation, Greater Chicago Chapter, learn how heart function can change in scleroderma patients. MORE: Six tips to help you take the…

This video from Scleroderma and Raynaud’s UK is about Sue Dryden, a professional landscape gardener who has worked at the prestigious Hampton Court Palace in Surrey, England, and the world-famous Chelsea Flower Show. MORE: Five tips for managing Raynaud’s Syndrome through the summer months Sue suffers…

Eating a healthy, balanced diet is essential for everyone, but for those living with a chronic lung condition, it is even more important to eat well. The food and drinks we consume can help us achieve better overall health and the nutrients can help protect the lungs against infection. MORE: Six …

Coping with a chronic illness is challenging, both physically and emotionally. Often the illness can change the way we look, making us feel self-conscious or embarrassed. This is not helped by people commenting on physical changes like weight gain or loss, or other body or facial changes. MORE: Find out some of the…

The Beverly Wilshire Hotel in L.A. played host to Bob Saget’s annual “Cool Comedy, Hot Cuisine” fundraiser for the Scleroderma Research Foundation. MORE: How Bob Saget became involved with scleroderma According to variety.com, in addition to raising awareness and much-needed funds for scleroderma, the event also offered an opportunity…

Chicago-based writer and Scleroderma News columnist Lisa Goodman-Helfand was just 10 years old when she was diagnosed with the autoimmune disease scleroderma. At the time, and throughout her childhood and adolescence, her parents played down the seriousness of the disease, hoping to protect her. MORE: How serious…

You may think the summer months offer some respite to those who suffer from Raynaud’s syndrome but the warmer months can bring their own set of problems. Many offices, shopping malls, and other public spaces turn on the air conditioning in the warmer weather, which is great for helping you cool…

We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it is even more important to look after these vital organs as best we can. The Rush University Medical Center has some…

This animated video from Demystifying Medicine explains the complication of pulmonary fibrosis in scleroderma patients. It begins by sharing that 80 percent of Asian scleroderma patients suffer from some form of pulmonary disease and that it’s the leading cause…

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…