Author Archives: Wendy Henderson

Genetic Studies in Scleroderma

In this video from the Greater Chicago Chapter of the Scleroderma Foundation, we see a presentation from the Scleroderma Patient Education Conference held on October 15, 2016 in Chicago. MORE: 12 things to care for when you have scleroderma Dr. Shervin Assassi, MD, an associate professor at the McGovern…

Explaining the Long-Term Progression of Scleroderma

This video from FESCA taken at the fourth Systemic Sclerosis World Congress in Lisbon in 2016 shares two presentations dedicated to the progression of scleroderma and how it affects patients on a long-term basis. MORE: Six tips for eating well with scleroderma First up is Dr. Jason Lee whose…

6 of the Best Apps for Chronic Illness Management

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

4 Tips to Help Navigate a Scleroderma Diagnosis

Being diagnosed with scleroderma can be overwhelming. It’ll take time to come to terms with the diagnosis and you’ll likely experience a range of emotions until then. MORE: Four of the most important questions about scleroderma However, there are ways to get your emotions under control. Firstly, it’s important to give yourself enough time to…

5 Ways You Can Help Raise Awareness of Scleroderma

If you’re a patient, a family member or a friend who wants to do more to help someone suffering from a chronic illness, spreading awareness is one of the greatest gifts you can give. Awareness can mean big changes, including more money for more resources and research into more effective treatments and diagnostic tests. Awareness…

Scleroderma Stories: McCoy Penland

It’s quite rare for a child to be diagnosed with scleroderma. According to the Cleveland Clinic, there are only between 5,000 and 7,000 children in the United States who have the disease. Of those affected, two-thirds are female. McCoy Penland was just 4 years old when her…

Hard Life, Hard Skin: A Scleroderma Documentary

Scleroderma is a rare but chronic autoimmune disease where the body overproduces collagen. This extra collagen makes the skin and other internal organs stiff and tight, which can result in many medical problems. MORE: 10 important symptoms of scleroderma In this video shared by N Williams, student…

Scleroderma Journeys: Sharing Patient Stories

Scleroderma is a rare but chronic autoimmune disease where the body overproduces collagen. This extra collagen makes the skin and other internal organs stiff and tight, which can result in many medical problems. MORE: Dr. Burt talks about hematopoietic stem cell transplantation (HSCT) and results of recent clinical trials…