The Scleroderma Research Foundation’s (SRF) annual “Cool Comedy – Hot Cuisine, A Tribute to Bob Saget” event, a…
Articles by Mary Chapman
With an emphasis on sparking conversations about the complex chronic autoimmune disease, supporters are observing Scleroderma Awareness Month this June…
The Scleroderma Research Foundation‘s annual star-studded “Cool Comedy, Hot Cuisine” event will this year honor the late comedian and actor Bob…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
The Scleroderma Foundation is announcing that it has more than doubled its annual research funding, to $2.7 million, and…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
From joining a walk-a-thon to sharing videos of themselves saying the rare disease’s hard-to-pronounce name, supporters are marking Scleroderma Awareness…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…