I take immunosuppressants to stop my body from fighting itself and reduce the symptoms of scleroderma. But that also…
Lisa Weber
Lisa Weber lives in the suburbs of Tampa, Florida, where she works hard at being a wife and mother of two beautiful girls. She’s passionate about overcoming challenges while living with a rare autoimmune disease called scleroderma. This systemic disease attacks her entire body inside and out. Her diagnosis came in 2014, but she continues doing the things she loves: working as a client success manager, cooking (poorly), building furniture, and jogging (slowly). She will tell you everything she does is perfectly imperfect! One of her life goals is to help raise awareness for rare diseases and continue her personal fight to survive and thrive until a cure is found.
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Articles by Lisa Weber
“It’s time to start a more aggressive scleroderma treatment,” my local rheumatologist says, although I’m not prepared to hear…
I lean closer to the mirror and steady my hand as I trace the waterline of my eyes. Then I…
Back in the late 1980s, I was listening to the iconic female hip-hop group Salt-N-Pepa as I entered my…
It was a particularly beautiful morning. The hot Florida sun was still low in the sky, and a light breeze…
I hate admitting that I often find myself trapped by jealousy. It makes me feel like I have a rotten…
The machine monitoring my vitals beeps annoyingly to alert the nurses that my blood pressure has dropped again. My limbs…
My little girls sway back and forth in their ruffled dresses. My face is fixed with a glowing smile as…
Decades ago, you passed quietly through the background of everyone’s busy lives. My heart still aches for you, even more…
As the meeting doors open, I’m met with the coolness of a windowless, air-conditioned room. Normally, I would welcome this…