Lisa Weber,  —

Lisa is the married mother of two beautiful girls. She holds a master’s degree and currently teaches third grade. She is extremely passionate about overcoming challenges while living with a rare autoimmune disease called scleroderma. This systemic disease attacks her entire body inside and out. Still, she manages to continue doing the things she loves: cooking (poorly), building furniture, jogging (slowly), and making clothes. She will tell you everything she does is perfectly imperfect! One of her life goals is to help raise awareness for rare diseases and to continue her personal fight to survive and thrive until a cure is found.

Articles by Lisa Weber

I Wish ‘Feeling Better’ Was Permanent

Cradled in my husband’s arms is one of my favorite places to be. His 6-foot-2 frame engulfs me in a blanket of warmth and safety. When I’m in pain, his cuddles calm me like a weighted blanket. On rare occasions, I have the opposite of a flare-up: I’m…

Learning to Catch My Breath With Interstitial Lung Disease

I stare at the two flights of stairs in front of me, wishing there was a magic elevator. With no other choice, I start climbing, slowly. Suddenly, my breathing is shallow. I inhale and exhale rapidly, my lungs desperate for air. Grasping the handrail, I steady myself and finally reach…

The Strange Gastrointestinal Sounds of Scleroderma

I remember it like it was yesterday. The classroom was quiet. My stomach suddenly decided it was angry with me for skipping lunch. The grumbling gastrointestinal noises were like thunder to my easily embarrassed self-esteem. Acting nonchalant, I looked around to see if anyone had noticed, hoping it was only…

I’m Not Losing My Mind, but It Sure Feels Like It

The scleroderma fog has struck again! My entire brain is floating inside a haze, and nothing is clear. I’ve been sitting in front of my computer for hours, writing and rewriting this column. I now have four different columns started, but as I write this, none are close to finished.

Scleroderma Stole My Christmas To-do List, and I’m Thrilled

When we became parents, my husband and I started our own holiday traditions. One of our favorites was taking our two daughters to snag the plumpest pine tree, and then going home to enjoy everyone’s favorite meal of homemade breaded chicken cutlets, mashed potatoes, and gravy. Bellies full,…

Finding the Right Doctor Can Make All the Difference

The alarm on my phone starts its disruptive routine early, and the repetitive noise annoys me out of my slumber. While the rest of the world remains cuddled up for a few more hours of sleep, my husband and I drag ourselves out of bed at 3 a.m. to catch a two-hour…

Anxiety Over Public Restrooms Is Real

I take immunosuppressants to stop my body from fighting itself and reduce the symptoms of scleroderma. But that also prevents my body from defending against bacteria and viruses. This makes me think of everything in a new way. After the first few months of taking immunosuppressants, I learned that…