Author Archives: Lisa Weber

My Husband Lives With Scleroderma, Too

People often ask me how I continue to battle scleroderma. My answer mirrors that of many others fighting awful diseases: I have no other choice. I may not have chosen to live with scleroderma, but my husband, Ross, does every single day. In the beginning, we fell in love hard…

Let’s Get Ready to Rumble in the Fight Against Scleroderma

The bell echoes loudly, signaling the fight’s start. The energy and stakes are high. Gloves on, two boxers face off with intense determination. Only one will be crowned champion. Living with scleroderma is uncomfortably similar to being a heavyweight boxer. Every day is spent tirelessly preparing for the next…

During Flare-ups, My Scleroderma Body Pauses Life

Messy is the best word I can use to describe a flare-up caused by scleroderma. My home, my thoughts, my life — they all unravel, and it’s messy. When my body is weak and consumed by aches, I spend a lot of time under blankets. During a flare-up, my…

How to Endure the Torture of Esophageal Testing

When something gets stuck in your throat, you’ll do everything imaginable to dislodge it. That’s why when someone intentionally threads a tube through your nose and down your esophagus, you really have to fight all of your basic instincts that want to remove it. Scleroderma can wreak havoc on the…

Acknowledging That This Time, I Need Help

Sometimes life deals a hand that tests us. We then look for ways to overcome those challenges. But what do we do when the bad news keeps coming? How do we keep moving forward when we feel like more weights than we can carry have been placed upon our shoulders?…

Meds or No Meds?

I used to save my empty pill bottles, thinking a Pinterest craft would catch my eye and I would have a good use for my vast collection of rusty-colored medicine containers. Instead, my stockpile grew so rapidly I had no choice but to give in and trash them. Unless I…