Back when we had to patiently sit through TV commercials, I would shake my head in confusion after hearing all…
Lisa Weber
Lisa Weber lives in the suburbs of Tampa, Florida, where she works hard at being a wife and mother of two beautiful girls. She’s passionate about overcoming challenges while living with a rare autoimmune disease called scleroderma. This systemic disease attacks her entire body inside and out. Her diagnosis came in 2014, but she continues doing the things she loves: working as a client success manager, cooking (poorly), building furniture, and jogging (slowly). She will tell you everything she does is perfectly imperfect! One of her life goals is to help raise awareness for rare diseases and continue her personal fight to survive and thrive until a cure is found.
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Articles by Lisa Weber
I may not be able to blow out all 44 candles in one breath, but I did get to live…
How many times have you asked yourself, “Is this scleroderma?” Odd sensations, abnormal changes, pain, and even visible deformities —…
The day after my high school prom, a group of us went to an amusement park to continue celebrating. After…
“Your life is controlled by what you focus on.” I read this Tony Robbins quote when I was diagnosed with…
Note: The headline of this story was updated April 19, 2022, to clarify that scleroderma isn’t becoming less rare,…
Do you remember playing “house” when you were little? I have fond memories of each of my little friends choosing…
It had been years since I’d stepped foot in a nail salon. Yet the moment the doors opened, I was…
I couldn’t find our family’s teacup-size dog. She had only been out of our sight for a few minutes. I…
Having a rare disease often means dealing with uncommon symptoms. Sometimes I get lucky and one of my specialists can…