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In this session, Dr. Tracy Frech will review the different clinical tools that your physician can use to assess your vascular health. The clinical use of blood pressure monitoring, capillaroscopy, echocardiography, and sublingual blood flow measurements will be discussed. This session was recorded in Nashville during the 2015 Scleroderma…

In this video from PAH.tv learn more about Scleroderma and its connection to pulmonary arterial hypertension (PAH). “Tracy Sperry, National Director of Development and Research for the Scleroderma Foundation, discusses the mission of the organization and scleroderma’s role in PAH. Recorded at the 2014 American Thoracic Society meeting in San…

Meet Tony Underhill. He lived a full, active, successful life until scleroderma ravaged his body and confined him to a wheelchair. His prognosis was dire, but then he learned about a clinical trial directed by Dr. Richard Burt at Northwestern University using adult stem cells to repair the effects…

Boehringer Ingelheim recently announced the enrollment of the first patient in the Phase 3 clinical trial SENSCIS (Safety and Efficacy of Nintedanib in Systemic SClerosIS) evaluating the safety and efficacy of the company’s product nintedanib (OFEV) in patients with systemic sclerosis and interstitial lung disease. Watch video above to learn…

In this video from the Scleroderma Foundation, watch “Unleashing Your Unsinkable Spirit” by Cindy Coney, a keynote speech from the 2015 Scleroderma Foundation National Patient Education Conference for patients with the chronic illness and those who love and care for them. Receiving a diagnosis of a life-challenging illness can…

Meet Gabriella Zalar. “This is the story of how I found out that I have Scleroderma, plus a few other things about my life. Although I do not have generalized scleroderma at this point, many other people have horrible, crippling, and life-threatening effects that are far worse than what scleroderma…

Last week’s hot topic on Scleroderma was the Scleroderma Patients with Hand Dysfunction Show Sustained Benefits from Cell Therapy written by Patricia Silva. The article is focused on the recently announced sustained positive results from the SCLERADEC-I clinical trial that assessed the effects of Cytori Cell Therapy (ECCS-50) in patients with hand dysfunction…

In this video by the Scleroderma Foundation, learn from Dr. Lorinda Chung’s session during the 2015 Scleroderma Foundation National Patient Education Conference in Nashville, Tennessee. “Dr. Lorinda Chung reviews symptoms and clinical presentations of muscle disease in patients with systemic sclerosis (SSc), tests to diagnose and monitor muscle disease, and…

In this video from Scleroforums, learn more about scleroderma and sclerodactyly from Amanda Thorpe for the International Scleroderma Network. Systemic sclerosis (scleroderma) can cause swelling, thickening and hardening of the fingers and/or toes. They may eventually become frozen into an immovable claw, which is called sclerodactyly. Sclero means hard, and dactyly…

In this video by the Scleroderma Foundation, listen to Dr. Janet Pope’s session during the 2015 Scleroderma Foundation National Patient Education Conference in Nashville, Tennessee. “The workshop discusses itching, pain, gut problems, Raynaud Phenomenon, and other symptoms many people suffer with due to living with scleroderma. Practical solutions to the pain…