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Caregivers: Don’t Ignore Your Check Engine Light!

In this video of a session from the 2015 National Patient Education Conference, organized by the Scleroderma Foundation, Ginny Maril, PhD, focuses on the caregiving experience and warns of important signs which should prompt caregivers check their own engines. Learn more about scleroderma and keep updated on all the…

CREST Syndrome – Meet the Experts

Crest syndrome is one of more than 80 autoimmune diseases that affect 23.5 million Americans, of which 75% of sufferers are women. Learn more about scleroderma here: http://bit.ly/learnscleroderma…

After 10 Years with Systemic Sclerosis, What Can I Expect?

In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, watch Dr. J. Lee talk about “Predicting the future with systemic sclerosis” and K. Fligelstone’s presentation about “A long life with systemic sclerosis”. Learn more about scleroderma here: http://bit.ly/learnscleroderma…

Last Week’s Hot Topic on Scleroderma

Last week’s hot topic on Scleroderma was about the Research of Lung Fibrosis in Scleroderma Reveals High Levels of Antibodies that Correlate with Disease Progression written by Margarida Azevedo. The article talks about the study that was presented at the 4th Systemic Sclerosis World Congress in…

What Do We Know About Scleroderma Now?

In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, 2016, listen to the “What do we know about scleroderma now?” presentation by Prof. C. Denton. Watch Prof. C. Denton exclusive interview with Scleroderma News here: http://bit.ly/20H6oJ0 Learn more about scleroderma here:…

Scleroderma in the Kidney

“Dr. Christopher Denton, with the Royal Free and University Hospital in the UK, is an expert on renal complications in scleroderma and in this session he provides insights on its impact for scleroderma patients.” Learn more about scleroderma here: http://bit.ly/learnscleroderma…

What Will Help Me Breathe Easily? Is My Heart Involved?

In this video from FESCA at the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, 2016, listen to: Prof. O. Distler : “Understanding lung problems” Dr. A. Cordiero and Dr. M. J. Loureiro: “HAP and the heart” A. Roennow: “Struggles with breathing” Learn more…