Many readers of Scleroderma News have reached out and urged us to do more to bring additional awareness about clinical trials applicable to the scleroderma patient community. In response, we have created a new clinical trial notification program which will help us match individuals directly to relevant clinical trials…
“You are not alone.” In this Rick Dancer video, learn more about scleroderma – the disease that no one talks about. “Not many people have heard of scleroderma. And often times even doctors don’t know how to diagnose this illness, which is so frustrating and the misdiagnosis can cause major…
https://www.youtube.com/watch?v=20YpGtfpMyg In this video by the Scleroderma Association of B.C., watch people trying to say “scleroderma.” Learn more about scleroderma here: http://bit.ly/learnscleroderma…
In this video by d1productionsmusic, watch this 2016 I Rock Teal for Scleroderma PSA for Horace Mann Elementary. Learn more about scleroderma here: http://bit.ly/learnscleroderma…
1 –Â 8 Scleroderma-Related Conditions You Should Look Out For Learn more about these eight scleroderma-related conditions you should look out for. Read full article:Â http://bit.ly/1UWD0yA 2 –Â New Cannabinoid-based Drug Slows Fibrosis, Blocks Inflammation in Early Scleroderma Study A research team has developed a cannabinoid-based drug which…
In this FESCA video from the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, watch the following presentations: Prof. A. Tincani: Improving sexuality Prof. V. Steen: Is it safe to get pregnant? C. Leite: My new baby G. Verzi: Developing sexual confidence R. Kanters: Enjoying your…
In this video by FESCA, listen to Prof. M. Mayes and Prof. P. Carreira answer questions from the audience at the Patient Congress at the 4th Systemic Sclerosis World Congress 2016, in Lisbon. Learn more about scleroderma here: http://bit.ly/learnscleroderma…
In this video by the Scleroderma Foundation, Greater Chicago Chapter, meet Lisa Helfand, writer, public speaker and blogger at ComfortableInMyThickSkin.com Learn more about scleroderma here: http://bit.ly/learnscleroderma…
In this FESCA video from the patient congress at the 4th Systemic Sclerosis World Congress in Lisbon, watch the following presentations: Dr. L. Kwakkenbos (NL): Coping with the everyday challenges of scleroderma V. Delisle: Do support groups help? Dr. J. Lee: Painful symptoms that cannot be measured…
Digital ulcers, or open sores on the fingers and toes that don’t heal, are common complications of systemic sclerosis. Approximately 30% of patients with systemic sclerosis have digital ulcers, most commonly on the fingertips or on the elbows due to taut skin or trauma. These painful…
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