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In this 2010 Scleroderma Research Foundation video titled “Moving Forward”, watch patients share their struggles with scleroderma and the important role of medical research in the search for a cure. Learn more about scleroderma here: http://bit.ly/learnscleroderma  …

In this Scleroderma Foundation video, learn more about the 2016 National Patient Education Conference centered around the theme: “Unmask the Cure”. Save the date on your calendar: July 29 – 31 2016 in New Orleans, Louisiana. Learn more about scleroderma here: http://bit.ly/learnscleroderma…

According to the Scleroderma Foundation, here’s a list of some frequently asked questions about scleroderma. What is scleroderma? How serious is it? How can scleroderma be diagnosed? What are the causes of scleroderma? Who usually develops scleroderma? When? Is there a treatment for scleroderma? What is it? Are people…

According to the John Hopkins Scleroderma Center, scleroderma has a big impact on your body, both emotional and physical. There are a number of the parts of your body that may be directly or indirectly affected by scleroderma and should be watched. Since scleroderma varies from people to people,…

Alice, without doubt, is one of the bravest pioneering patients of the global Ssc community, and whose story personalizes how devastating and aggressive this diagnosis can be, but how it can be overcome. Alice underwent a double lung transplant in 2012, and has been taking part in marathons since 2014.

In this Scleroderma Foundation video, learn more about what it’s like living with scleroderma. This video features actor Jason Alexander; Football Hall of Famer Barry Sanders; actor and comedian Mark Teich; author and personality Mitch Albom, and scleroderma patients. “The one thing I would change with my Scleroderma would…

According to the Mayo Clinic, preparing a list of doubts, fears and questions you have can help you during your doctor’s appointment. Here are some questions to keep in mind: What is the most probable cause of my symptoms? Are there other possible causes? What other symptoms should…

The fatigue that accompanies scleroderma is not only an unwelcome, relentless symptom which is difficult to control and manage but can also quite often be overlooked, with the initial management of the disease focusing on the more important (quite rightly), life threatening skin and organ fibrosis progression. There are possibly a…

According to the Scleroderma Foundation, there are some common-sense tips that a scleroderma patient should pay attention in order to better his/her health and well-being. 1. Manage your fatigue In order to deflect fatigue, make sure to avoid major efforts and get plenty of rest. It is in your best interest…

Scleroderma 5K and Family Fun Day in the Valley, a Scleroderma Foundation of Southern California event, will happen May 15, 2016 at the Van Nuys Sherman Oaks War Memorial Park. Apart from the walk, it will have “Music, awesome raffles, food truck (for purchase), entertainment, awards and a kidzone with…