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In this trailer from documentary creator and director Christy McCaffrey, learn more about “Project Scleroderma: Beneath the Surface”, a film narrated by Bob Saget. Learn more about scleroderma here: http://bit.ly/learnscleroderma…

In this University of Pittsburgh Medical Center video, Robyn Domsic, MD, MPH, assistant professor of medicine in the Division of Rheumatology and Clinical Immunology at UPMC, shares information about staging and defining scleroderma and how a proper classification can help rheumatologists craft effective treatment plans for patients with limited or diffused…

 Because “Stepping Out to Cure Scleroderma” walks do not occur in every city across America and it’s important to the Scleroderma Foundation that everyone has an opportunity to participate in the walk in some way, they have decided to celebrate World Scleroderma Day in a different way. The National Office of…

In this Scleroderma Research Foundation video, researcher Dr. Howard Chang talks about the progress made against scleroderma and the findings of the epigenetic basis for understanding the disease at its most basic level. Learn more about scleroderma here: http://bit.ly/learnscleroderma Scleroderma News is strictly a news and information website about…

In this Scleroderma Foundation, Greater Chicago Chapter video, learn more about “Scleroderma and the Oral Health Implications” with Martin Hogan, DDS, Loyola Medical Center Learn more about scleroderma here: http://bit.ly/learnscleroderma Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or…

Meet Nicola Whitehill. At 24 years of age she was diagnosed with diffuse systemic sclerosis (scleroderma) and Raynaud’s phenomenon. “My full-time job now is to manage my symptoms to a controllable level. In 2013 I came out of the scleroderma closet to the world by way of the Daily Mail publishing my…

According to the Mayo Clinic, scleroderma can appear in different forms and vary from person to person. Since it may affect a wide range of body areas, it can be hard to properly diagnose. Usually, doctors diagnose scleroderma using: Your medical history Your doctor will want to fully understand your…

June 29th is recognized around the world as being World Scleroderma Day. This date is an opportunity for anybody with an interest in scleroderma (systemic sclerosis) to join together as a single, united global voice, to shine the spotlight on this little-understood rare disease. Due to the present unwelcome…

Two years ago, a 12-year-old girl named Carly Bankovich was playing basketball when she felt a strange sensation and knew something wasn’t right. She just didn’t know what. “My hands were not moving like they should have been,” remembers Carly.  “The skin on my arms was hard…

In this 2010 Scleroderma Foundation video, find out more about their work with Chris Harrison, host of ABC’s “The Bachelor.” “The Scleroderma Foundation: Support, Education, and Research. This is our trifold mission, so please, get involved today” Learn more about scleroderma here: http://bit.ly/learnscleroderma…