People living with scleroderma are being invited to take part in a new survey designed to better understand how the chronic autoimmune disease affects their daily lives. The findings may help guide future research and, ultimately, improve patient care. The Scleroderma Health and Resources Survey, launched by the…
Discussion
Scleroderma is now part of a federal program that aims to help understand underlying mechanisms and develop new treatments and diagnostic targets for autoimmune conditions. The Foundation for the National Institutes of Health (FNIH) has expanded its Accelerating Medicines Partnership Autoimmune and Immune-Mediated Diseases (AMP AIM) program,…
Discussion
An investigational off-the-shelf, or readily available, CAR T-cell therapy has shown early signs of effectiveness — with clinical improvements and no serious safety concerns — in the first four people with systemic sclerosis (SSc) treated in an ongoing clinical trial in the U.S. and Europe. That’s according to preliminary…
Becoming educated and informed about scleroderma is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your scleroderma journey.
There is no cure for scleroderma yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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