In this video from Grace Sherry shared in 2013, we get to meet Shannie Carnline.  Shannie is a 16-year-old with morphea – a form of scleroderma where the connective tissues in the skin become thick and hard. Discover seven tips to help you live better with your scleroderma.
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Life with Scleroderma: Dawn’s Determination
Scleroderma, a chronic autoimmune disease, occurs when the body creates too much collagen which causes connective tissues in the skin and internal organs to tighten and become hard. The disease mainly affects women between the ages of 30 and 50, but children and men can also develop scleroderma. There are approximately 2.5…
7 Benefits of Vitamin D
Vitamin D is often called the “sunshine vitamin” mostly because we can get it naturally when the sun’s UV rays interact with our skin, which triggers the vitamin’s synthesis. The VIP vitamin aids our body’s absorption of calcium to keep our bones strong and encourage healthy cells to grow.  Here are a few more health benefits of…
Project Scleroderma: Beneath the Surface
There are approximately 2.5 million people in the world who have scleroderma — around 300,000 in the U.S. alone. Project Scleroderma – Beneath the Surface is an internet documentary led by 26-year-old Christy McCaffrey, of Philadelphia, to raise awareness of the disease that took her mother’s life in 2009. Here…
7 Facts About Scleroderma-related PAH
Scleroderma (SSc) is a rare but progressive autoimmune disease that mainly affects women between the ages of 20 and 50, although men and children can also develop the disease. Many patients who have scleroderma also develop pulmonary arterial hypertension (PAH). Find out more: 1. According to the Scleroderma Foundation, there…
Scleroderma from Diagnosis to Symptoms
With scleroderma, connective tissues in the body’s major organs become thickened due to an overproduction of collagen.  Scleroderma most noticeably affects the skin, but it can also affect internal organs leading to other diseases such as pulmonary arterial hypertension, heart, and GI tract diseases. Read about seven common complications of…
Scleroderma is a chronic autoimmune disease that can attack various organs of the body. Many patients with scleroderma have interstitial lung diseases (ILDs). ILDs cause scarring of the lungs which makes breathing very difficult and life-threatening. Read about a clinical trial for a promising therapy for systemic scleroderma…
7 Scleroderma Complications
Because scleroderma can affect any organ of the body, patients symptoms and complications vary greatly, according to the Mayo Clinic. Here are seven common complications: 1. Fingertips As a result of Raynaud’s disease (experiences by most with scleroderma) blood flow to the hands becomes so restricted that the tissues at…
Scleroderma Foundation Events Near You
Support is very important if you have scleroderma. Finding a local group of others who are on the same journey as you and meet regularly to talk about it, could provide a priceless lifeline and widen your circle of friends. Find out about some scleroderma-related conditions according to the Scleroderma…
Scleroderma Stories: Amy’s Stem Cell Treatment
Scleroderma is a systemic autoimmune disease that causes hardening of the skin and connective tissues. The disease mostly affects women ages 30-50, but children and men can also have scleroderma. Each person’s experience with the disease is individual to them. Some may deal with slight skin tightening while others could suffer with…
Recent Posts
- Survival improves for SSc-PAH patients on combination therapy
- Combination drug therapy boosts lung, skin health in SSc patients
- On choosing medicine’s side effects over scleroderma progression
- Telerehabilitation improves hand mobility in scleroderma women
- Molecular pathway ID’d as key driver of scarring in scleroderma
- Limited hand function disrupts daily life for people living with SSc
- Coping with loss is part of living with scleroderma
- CAR T-cell therapy eases SSc symptoms, early trial data show
- Milk-derived particles may offer treatment path for SSc fibrosis
- New skin markers help doctors refine dcSSc treatment prognosis