The last two weeks have been extremely challenging. Living the scleroderma lifestyle means I never know what is around the next corner. Waking up brings a daily surprise, sometimes good, and other times not so pleasant. I have learned to go with whatever the disease presents me with…
Social interaction is necessary, for most of us, to thrive in life. From childhood on, many bonds are formed in school, church, a workplace or social gatherings. Strong connections are forged from similar personality traits and common interests. As time passes, a flower of friendship is watered with good…
The 19th Annual Scleroderma Foundation National Patient Education Conference is expected to bring together over 600 scleroderma patients, their families, friends, caretakers, and some of the world’s leading healthcare professionals and researchers. As previously announced, the conference will take place this week, July 21–23, in Chandler, Arizona. The venue…
Rosa Johnson Scleroderma, an autoimmune disease, causes an abnormal toughening of the area of the body affected, which can be anywhere from the skin to internal organs, which leads to a steady loss of function. The Scleroderma Foundation estimates that about 300,000 Americans have scleroderma, and the disease is…
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