7 Things People With Invisible Illnesses Think You Should Know

Chances are you know someone who has an invisible illness. An invisible illness means that a person is suffering from an illness or disease which isn’t necessarily visible on the outside. However, just because you can’t see what’s wrong doesn’t mean that there isn’t anything wrong.

People with invisible illnesses often need just as much practical and emotional support as those with illnesses you can see, but sometimes it can be difficult to know how to help. We’ve put together a list of things you should know about someone with an invisible illness based on information from prevention.com.

Don’t assume they’re faking their disability. 

Just because someone has a disabled sticker on their car doesn’t necessarily mean they’re wheelchair-bound. Many people have these stickers because they need oxygen to get around or are waiting for organ transplants. Yes they might be able to walk, but they might not be able to walk very far and even a short distance can take a lot of effort.

Despite there being approximately 300,000 people in the U.S. who have scleroderma, it seems that many people are either completely unaware of the disease or are confused as to what the disease actually is.

Understand that symptoms may come and go. 

People with invisible illnesses often suffer from extreme fatigue and chronic pain. Sometimes just getting through the day is difficult, leaving them with no desire to go out socializing after work. On the flip side, don’t assume that because they have an illness that they won’t want to go out–they might be having a good day and are feeling great. Be inclusive but respect the person’s decision, only they will know whether they are up for the activity.

Here are seven tips to manage your fatigue.

Help is appreciated. 

People with invisible illnesses often lead busy lives, including working, looking after family, and running active, busy households. An occasional offer of help, such as offering to run errands or cooking them a casserole will be greatly appreciated. Offer to be a point of contact should your friend suddenly need hospital treatment so you can support them. Ask them directly what you can do for them.

Here are some scleroderma-related conditions you should look out for according to the Scleroderma Foundation.

They may look great but feel terrible.

A person may look good on the outside; they can dress well, have their hair and make-up done to perfection, but this doesn’t always reflect how they’re feeling on the inside. They may be masking both physical and emotional pain, and struggling to hold it together. Be a good friend and confidant, someone they feel comfortable talking to.

Looking for more facts? Here are 10 autoimmune facts and statistics. 

They don’t want pity.

Chronic illness sufferers don’t want people’s pity, and this is just as true for people suffering from an invisible illness. Treat them with respect and don’t assume they can’t do things because of their illness–ask them!

Here are seven facts you should know about Raynaud’s.

Take them at their word. 

If they say they’re too sick today to go to work, go to the movies, or even eat…believe them. Likewise, if they say they are well enough to do things, believe them then, too.

Here are 20 facts about pediatric scleroderma.

Don’t offer advice if they don’t ask for it.

Unless you are a professional in the field, steer away from giving any unsolicited medical, nutritional, or mental health advice. More than likely the person will have already tried what you’re suggesting or it will be downright dangerous for them. Leave the advice to the experts.

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. 

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.