Scleroderma Journeys: Watch Patients’ Testimonies of Having Rare Diseases
Scleroderma is a rare condition characterized by the hardening and tightening of the skin and connective tissue. In addition to the physical symptoms of scleroderma, suffering from a rare disease can be lonely, which is why knowing other people going through the same as you can help you cope better with it. Therefore, the Scleroderma Society of Canada has shared this video with testimonies of patients telling their stories of survival and how they cope daily with scleroderma.
“Scleroderma is a HARD word to say, but it is an even HARDER disease to be affected by. An autoimmune disease with no known cause or cure, scleroderma affects people of all ages, genders, and ethnicities,” explains the video shared by the YouTube channel of the Scleroderma Society of Canada. “This video explored the lives of several scleroderma patients, in which they discuss their challenges, as well as what gives them hope.”
Bob Saget is a well-recognized comedian, TV host, and actor. But what one might not know is that he is also an advocate for scleroderma.
How and why did he become involved with scleroderma?
Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
