Scleroderma Awareness Month Recap: 15 Articles Selected for You

Throughout June, our resident blogger and scleroderma patient, Nicola Whitehill, posted daily information and facts about scleroderma to celebrate the Scleroderma Awareness Month.

Here are the first 15 articles of the month you cannot miss.

Day 1 SCLERODERMA Awareness Month

“Today’s post is a ‘basic’ explanation as to the different types of scleroderma and their involvement with the body.”

Day 2 SCLERODERMA Awareness Month

“Scleroderma is systemic and can affect the entire body, depending on the type of scleroderma present in the body. This can be identified by specific blood screening and other diagnostic tests.”

Day 3 SCLERODERMA Awareness Month

“Scleroderma is a systemic disease which can affect the entire body. This includes body organs, muscles, nerves, glands…. EVERYwhere!”

Day 4 SCLERODERMA Awareness Month

“The symptoms of scleroderma can differ from patient to patient, with no two patients displaying the exact same set of symptoms. This makes diagnosis and treatment more challenging to meet the needs of the individual patient.”

DAY 5 Scleroderma Awareness Month – Diagnostic Tests

“Early diagnosis is crucial to prevent life-threatening damage to the scleroderma patient. And no two scleroderma patients are truly alike when it comes to symptoms.”

DAY 6 Scleroderma Awareness Month: DIAGNOSIS GUIDELINES

“Today’s post is a copy of the current guidelines which are accepted globally when reaching a systemic sclerosis scleroderma diagnosis.”

DAY 7 Scleroderma Awareness Month – RAYNAUD’S

“Raynaud’s can be an initial symptom in the autoimmune patient (MS, Lupus, Fibromyalgia) and, which of course, includes scleroderma.”

DAY 8 Scleroderma Awareness Month – RAYNAUD’S Treatment Guidelines

“Today’s post shows the management of Raynaud’s as advised by the UK Scleroderma Study Group at The Royal Free Hospital in London.” 

DAY 9 Scleroderma Awareness Month – DIGITAL ULCERS

“Today’s image shows the current NHS England management guidelines for The Best Practice of Digital Ulcer Management.”

DAY 10 Scleroderma Awareness Month: Skin Involvement

“One of the major organs affected by scleroderma is the thickening of the skin, as the name implies, sSclero, meaning thick, derma, meaning skin.”

DAY 11 Scleroderma Awareness Month: Gastro-Intestinal Involvement

“Many patients diagnosed with scleroderma have gastro-intestinal problems with a multitude of symptoms.”

DAY 12 Scleroderma Awareness Month: Nicola Whitehill

“Today is my birthday, and how delighted I am that I have made it to 43, 17 years post my initial medical prognosis expiry date.”

DAY 13 Scleroderma Awareness Month: Factor XIII

“The Rheumatology clinical trials unit at The Royal Free Hospital in London are conducting a clinical trial to see if purified Factor XIII will be an effective treatment for scleroderma patients.”

DAY 14 Scleroderma Awareness Month: FATIGUE

“Fatigue is a well-known, chronic, debilitating and severe symptom to the autoimmune disease patient, and especially so with scleroderma.”

DAY 15 Scleroderma Awareness Month: KIDNEY / RENAL Involvement

“Scleroderma can affect all parts of the body, and it is important to note that not every scleroderma patient will develop kidney-related symptoms.”

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.