Rare Disease UK Reception at the House of Commons 2.3.16
On Wednesday 2nd March 2016, I had the honour of attending the Rare Disease UK reception for rare diseases at the House of Commons hosted by Liz Kendall MP. This is…
Living The Dream - Nicola Whitehill
Nicola was diagnosed with diffuse systemic sclerosis and Rayanud’s in 1997. Given a prognosis of 15 months, she was advised to give up her dream of becoming a barrister. Stubborn Nicola became a practicing barrister in March 2004. Nicola has worked as a patient advocate for the National Health Service, the European Medicines Agency, Eurordis, and the FESCA World Scleroderma Day event. When not advocating, she enjoys relaxing with her dogs in Southport, England.
Featured Post
A New Year and New Challenges
I survived the holidays! As fellow patients living with chronic, degenerative, rare diseases know all too well, there is no holiday from our daily myriad symptoms. The holidays can be…
Read more
