Living The Dream - Nicola Whitehill

Living the Dream Scleroderma Style

Nicola was diagnosed with diffuse systemic sclerosis and Rayanud’s in 1997. Given a prognosis of 15 months, she was advised to give up her dream of becoming a barrister. Stubborn Nicola became a practicing barrister in March 2004. Nicola has worked as a patient advocate for the National Health Service, the European Medicines Agency, Eurordis, and the FESCA World Scleroderma Day event. When not advocating, she enjoys relaxing with her dogs in Southport, England.
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A New Year and New Challenges

I survived the holidays! As fellow patients living with chronic, degenerative, rare diseases know all too well, there is no holiday from our daily myriad symptoms. The holidays can be isolating and difficult, as sometimes I am physically unable to join festivities. I am hypervigilant about…

Nicola Whitehill

Nicola Whitehill -- Living The Dream

Rare Disease UK Reception at the House of Commons 2.3.16

On Wednesday 2nd March 2016, I had the honour of attending the Rare Disease UK reception for rare diseases at the House of Commons hosted by Liz Kendall MP. This is the fourth time that Liz has hosted the annual reception for recognising rare disease day, which…

Rare Disease Day 2016: a Highlight on Scleroderma

I am very excited to make Rare Disease Day 2016 the focus of my first post for Scleroderma News. What is Rare Disease Day? From Eurordis.org: “Held each year on the last day of February, Rare Disease Day is an annual awareness-raising event coordinated…

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