Meet Gabriella Zalar. “This is the story of how I found out that I have Scleroderma, plus a few other things about my life. Although I do not have generalized scleroderma at this point, many other people have horrible, crippling, and life-threatening effects that are far worse than what scleroderma…
Last week’s hot topic on Scleroderma was the Scleroderma Patients with Hand Dysfunction Show Sustained Benefits from Cell Therapy written by Patricia Silva. The article is focused on the recently announced sustained positive results from the SCLERADEC-I clinical trial that assessed the effects of Cytori Cell Therapy (ECCS-50) in patients with hand dysfunction…
In this video by the Scleroderma Foundation, learn from Dr. Lorinda Chung’s session during the 2015 Scleroderma Foundation National Patient Education Conference in Nashville, Tennessee. “Dr. Lorinda Chung reviews symptoms and clinical presentations of muscle disease in patients with systemic sclerosis (SSc), tests to diagnose and monitor muscle disease, and…
In this video from Scleroforums, learn more about scleroderma and sclerodactyly from Amanda Thorpe for the International Scleroderma Network. Systemic sclerosis (scleroderma) can cause swelling, thickening and hardening of the fingers and/or toes. They may eventually become frozen into an immovable claw, which is called sclerodactyly. Sclero means hard, and dactyly…
In this video from the Scleroderma Foundation, learn from Dinesh Khanna, MD, MS, about the gut involvement (also called digestive system or gastrointestinal involvement) in scleroderma and how it can affect up to 95 percent of people suffering from the disease. This lecture from the 2015 Scleroderma Foundation National…
In this video by the Scleroderma Foundation, listen to Dr. Janet Pope’s session during the 2015 Scleroderma Foundation National Patient Education Conference in Nashville, Tennessee. “The workshop discusses itching, pain, gut problems, Raynaud Phenomenon, and other symptoms many people suffer with due to living with scleroderma. Practical solutions to the pain…
In this video from the Scleroderma Foundation, learn more about overlapping conditions in systemic sclerosis by Tamiko Katsumoto, M.D. Scleroderma is a complex disease, and research has highlighted the significant heterogeneity of this condition. In many cases, scleroderma patients may experience clinical features of other autoimmune diseases, and these…
Watch this video to learn more about the scleroderma symptoms and hear some kwhitsitt1’s ideas on treatment. Learn more about scleroderma here: http://bit.ly/learnscleroderma Note: Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or…
In this video from the Scleroderma Foundation, learn more about Disability Benefits: Know Your Rights by Jennifer Louise Fry, Esq Get information and insight into how the Social Security Disability process works from an attorney who specializes in disability law. Understand what the Social Security Administration is looking for when they…
Cool Comedy – Hot Cuisine is the Scleroderma Research Foundation’s signature fundraiser. It’s a night of gourmet cuisine and world-class comedy hosted by SRF Board Member and actor/comedian Bob Saget, featuring the foods of celebrity chefs and appearances from some of the biggest names in comedy – including Jimmy Fallon,…
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