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Bob Saget is a recognized comedian, television host, and actor. But do you know that he is also an advocate for scleroderma? In fact, Saget is a member of the Scleroderma Research Foundation’s board of directors. Though his sister died from the chronic and currently incurable disease, Saget’s journey with scleroderma started…

https://www.youtube.com/watch?v=ErchMUH0oXY In this animated video from Hack Dentistry, learn about the hypothesized pathogenesis of scleroderma. The video is aimed at dental students who may come into contact with scleroderma patients throughout their careers. MORE: 12 things to care for when you have scleroderma Hack Dentistry explains how the disease develops,…

Every morning I am woken early by my husband, Max, brandishing a cup of tea and some toast. My body is always stiff, sore and swollen. I am unable to do very much until I’ve eaten something so I can take my pain relief medications.

People with scleroderma realize they need exercise to keep their joints flexible. However, those living with the condition can often experience a lot of pain and the idea of exercising and risking making the pain worse is not an appealing one. When they do find the will and energy to exercise, it’s important they pace themselves. If they push themselves too hard on a day they’re active, they may not be in good condition for the rest of the week. Anyone with scleroderma should talk to…

Scleroderma or systemic sclerosis (SSc) is a rare autoimmune disease whereby the body produces too much collagen. The symptoms a person can present are widespread and many different parts of the body can be involved. According to the Scleroderma Foundation, these are the main areas of the body affected by scleroderma.

Despite there being approximately 300,000 people in the U.S. who have scleroderma, it seems that many people are either completely unaware of the disease or are confused as to what the disease actually is. With this in mind, we’ve put together a list of common misconceptions about scleroderma so non-patients…

For scleroderma patients, Raynaud’s phenomenon symptoms are much more apparent in the winter when the brutal cold takes its toll. However, there are ways to manage the condition that can help sufferers quickly recover from a flare and get the circulation flowing again. We’ve put together a list of six tips to…

Writer Amy Gietzen has lived with scleroderma for 16 years. Diagnosed with the condition at 19, she has seen her body go through many changes and has had to adjust to the hardships life has thrown her way due to the disease. MORE: Professional gardener explains how scleroderma and Raynaud’s affect her…

Pain, along with fatigue, is one of the main symptoms of scleroderma and one of the toughest to deal with on a day-to-day basis. While the areas of the body affected by pain will vary from one scleroderma patient to another, the pain is generally caused by one of these five…

According to the John Hopkins Scleroderma Center, scleroderma takes a big toll on your body, both emotionally and physically. There are a number of body parts that may be directly or indirectly affected by scleroderma and should be monitored. Since scleroderma varies from patient to patient, the symptoms and physical effects are often very…