In this video from the Hospital for Special Surgery, learn more about children and scleroderma. “Many do not realize that this is not a disease exclusive to adults. Dr. Thomas Lehman, Chief of Pediatric Rheumatology, explains the signs and symptoms of scleroderma, as well as when you should seek…
In this video from the Scleroderma Foundation, learn more about hematopoietic stem cell transplants (HSCT) and how it’s showing a lot of promise in the treatment of aggressive scleroderma. In this session, hear from a patient and her husband about what HSCT is and isn’t, their decision to pursue…
In this video from the Scleroderma Foundation, Greater Chicago Chapter, listen to Maureen D. Mayes, MD, MPH present at the Scleroderma Patient Education Conference, October 19, 2013 at Northwestern Memorial Hospital. Learn more about scleroderma here: http://bit.ly/learnscleroderma…
“Reality Cares TV interviews Bob Saget, host of the Scleroderma Research Foundation Benefit on May 25, 2010, Cool Comedy – Hot Cuisine.” Learn more about scleroderma here. Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or…
https://www.youtube.com/watch?v=2SZenSAMexo In this video from Arthritis Research UK, learn the basics of Scleroderma. Learn more about scleroderma here: http://bit.ly/learnscleroderma…
In this session, Dr. Tracy Frech will review the different clinical tools that your physician can use to assess your vascular health. The clinical use of blood pressure monitoring, capillaroscopy, echocardiography, and sublingual blood flow measurements will be discussed. This session was recorded in Nashville during the 2015 Scleroderma…
In this video from PAH.tv learn more about Scleroderma and its connection to pulmonary arterial hypertension (PAH). “Tracy Sperry, National Director of Development and Research for the Scleroderma Foundation, discusses the mission of the organization and scleroderma’s role in PAH. Recorded at the 2014 American Thoracic Society meeting in San…
Meet Tony Underhill. He lived a full, active, successful life until scleroderma ravaged his body and confined him to a wheelchair. His prognosis was dire, but then he learned about a clinical trial directed by Dr. Richard Burt at Northwestern University using adult stem cells to repair the effects…
Boehringer Ingelheim recently announced the enrollment of the first patient in the Phase 3 clinical trial SENSCIS (Safety and Efficacy of Nintedanib in Systemic SClerosIS) evaluating the safety and efficacy of the company’s product nintedanib (OFEV) in patients with systemic sclerosis and interstitial lung disease. Watch video above to learn…
In this video from the Scleroderma Foundation, watch “Unleashing Your Unsinkable Spirit” by Cindy Coney, a keynote speech from the 2015 Scleroderma Foundation National Patient Education Conference for patients with the chronic illness and those who love and care for them. Receiving a diagnosis of a life-challenging illness can…
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