If you’re a patient, a family member or a friend who wants to do more to help someone suffering from a chronic illness, spreading awareness is one of the greatest gifts you can give. Awareness can mean big changes, including more money for more resources and research into more effective treatments and diagnostic tests. Awareness…
Social Clips
Scleroderma Stories: McCoy Penland
It’s quite rare for a child to be diagnosed with scleroderma. According to the Cleveland Clinic, there are only between 5,000 and 7,000 children in the United States who have the disease. Of those affected, two-thirds are female. McCoy Penland was just 4 years old when her…
Management of Daily Skills: Hand and Face Exercises
Scleroderma is a rare autoimmune condition whereby the body produces too much collagen, which presents widespread symptoms in different parts of the body. MORE: Do you know the main areas of the body affected by scleroderma? In this Scleroderma Foundation video, Janet Poole, Ph.D. talks…
Hard Life, Hard Skin: A Scleroderma Documentary
Scleroderma is a rare but chronic autoimmune disease where the body overproduces collagen. This extra collagen makes the skin and other internal organs stiff and tight, which can result in many medical problems. MORE: 10 important symptoms of scleroderma In this video shared by N Williams, student…
Scleroderma Journeys: Sharing Patient Stories
Scleroderma is a rare but chronic autoimmune disease where the body overproduces collagen. This extra collagen makes the skin and other internal organs stiff and tight, which can result in many medical problems. MORE: Dr. Burt talks about hematopoietic stem cell transplantation (HSCT) and results of recent clinical trials…
Service dogs are typically thought of as necessary companions for the visually impaired, but service and therapy dogs can be a practical solution for people with a variety of chronic illnesses including scleroderma. As well as being a trusted friend, service dogs can expand owners’ motor abilities, granting them new independence and…
4 Tips for Managing Scleroderma on a Daily Basis
A scleroderma diagnosis can leave a person reeling with different emotions. It’s important to know that while there is no cure, the disease can be managed and for many, treatment can limit the impact it has on their lives. According to the Scleroderma Foundation, there are a…
Being diagnosed with scleroderma can be devastating, and as the disease progresses, your life is bound to change. However, this doesn’t mean that you have to let scleroderma take over — you can regain control and live a happy and productive life. According to hopkinsscleroderma.org, there are three main…
6 Recommendations For Eating Well With Scleroderma
According to the Scleroderma Foundation, what we eat ends up affecting our body and our health in many ways. Fruits and vegetables are beneficial foods since they provide our bodies with energy and essential nutrients. On the other hand, processed junk foods are devoid of nutrients and when consumed in large quantities can potentially be harmful to…
10 Scleroderma Facts to Know About
Scleroderma is an autoimmune disorder. This means it occurs when the body’s immune system malfunctions. It mistakenly identifies healthy cells as foreign cells and starts attacking and destroying them. Scleroderma is just one of many autoimmune diseases. It’s a chronic rheumatic disease that affects the body by hardening connective tissue.
Recent Posts
- Dexamethasone reduces inflammation, scarring in SSc mouse model: Study
- Survival improves for SSc-PAH patients on combination therapy
- Combination drug therapy boosts lung, skin health in SSc patients
- On choosing medicine’s side effects over scleroderma progression
- Telerehabilitation improves hand mobility in scleroderma women
- Molecular pathway ID’d as key driver of scarring in scleroderma
- Limited hand function disrupts daily life for people living with SSc
- Coping with loss is part of living with scleroderma
- CAR T-cell therapy eases SSc symptoms, early trial data show
- Milk-derived particles may offer treatment path for SSc fibrosis