Throughout June, our resident blogger and scleroderma patient, Nicola Whitehill, posted daily information and facts about scleroderma to celebrate the Scleroderma Awareness Month. Here are the first 15 articles of the month you cannot miss. Day 1 SCLERODERMA Awareness Month “Today’s post is a ‘basic’ explanation…
In a recent study for Clopidogrel (Plavix) treatment, it was discovered that it may worsen blood vessel dysfunction and lead to the development of new digital ulcers in patients with scleroderma. So, what is Clopidogrel? Clopidogrel, also known as Plavix, is a drug blocking the activation of platelets…
Eight years ago, Jessica Massengale was diagnosed with scleroderma, an autoimmune disease that causes scarring on her skin and some internal organs. Watch her direct message to scleroderma. In this video by Jessica Massengale video, learn more about diet and its effects on…
Throughout June, our resident blogger and scleroderma patient Nicola Whitehill posted daily information and facts on scleroderma to mark Scleroderma Awareness Month. Read all Nicola’s Scleroderma Awareness Month articles here. While scleroderma is a rare disease with a certain lack of understanding and currently no cure, the…
Therapeutic plasma exchange (TPE) is a novel method for patients with scleroderma that may revolutionize the treatment of the disease and is considered a new hope for patients. The technique was recently presented at the American Society for Apheresis (ASFA) 2016 Annual Meeting in a presentation titled “Therapeutic Plasma Exchange…
1. Scleroderma Patient in Long-Term Remission with TPE Treatment At the end of 2015, a case study revealed a success in long-term treatment with therapeutic plasma exchange (TPE). Learn all about it here. 2. Scleroderma Education Project Delves into Organ Involvement in Recent Post In…
At the end of 2015, a case study revealed a success in long-term treatment with therapeutic plasma exchange (TPE). Learn all about it here. “Benefit of Long-Term Therapeutic Plasma Exchange Treatment in a Patient with CREST Syndrome (Limited Systemic Scleroderma): A 21-Year Success Story,” reported a successful symptom management…
Back in May, Scleroderma News had an exclusive interview with Edward Harris, the man behind the Scleroderma Education Project. Back then he presented a review and analysis of published data about therapeutic plasma exchange (TPE), a potential technique for treating scleroderma, at the American Society for Apheresis…
https://www.youtube.com/watch?v=hGKiYQRQY4Y In this Scleroderma Foundation, Greater Chicago Chapter video, listen to Michael J. Cuttica MD, Assistant Professor of Medicine, Northwestern Pulmonary Hypertension talking at a Scleroderma Patient Education Conference about the relationship of pulmonary arterial hypertension and scleroderma. Learn more about this relation here. Pulmonary…
According to the University of Michigan’s Department of Internal Medicine Patients, “Patients with limited scleroderma have the risk of developing progressive blood vessel narrowing in the lungs frequently in the absence of lung scarring and inflammation. This complication is called pulmonary arterial hypertension (PAH).” Learn more about…
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