Winter is a perilous time if you have a compromised immune system, but you can’t stay alone inside for four months. You have to get on with your daily life, and just hope you don’t succumb to other people’s bugs and illnesses. However, there are some foods that can help you avoid catching a cold…
In this moving video from Tom Seawell, Paul Cetani tells the story of how he was diagnosed with idiopathic pulmonary fibrosis (IPF). A study found that scleroderma-related pulmonary fibrosis was linked to right ventricular dysfunction. Paul was diagnosed with IPF in 2009 and his lungs were so bad…
Everyone suffers from stress from time to time but when you have a chronic disease, stress not only adds to your everyday burden but can often exacerbate the symptoms of your condition. While we can’t avoid stress altogether, there are ways that we help ourselves relax more and not let things…
Many women with scleroderma may feel self-conscious about changes to their skin, particularly on their faces. They’ll often apply makeup to try and cover up any changes without realizing that they might need to adopt a new technique. In this video from Scleroderma SC, makeup artist David Nicholas demonstrates…
Farah Khaleck was just 17 when she first started experiencing the symptoms of the autoimmune disease scleroderma. In this vlog, she’s waiting to be interviewed on Kenyan television about her life. Watch Farah being interviewed on Kenyan television about her journey with scleroderma. The first symptoms of…
According to WCPO Cincinnati, a town is rallying around its chief of police and raising funds to cover his medical expenses. Read about seven common complications of scleroderma here. Darryl Haussler has served Butler County, Ohio for more than 20 years and now the town wants to repay…
This Facebook video from Science Nature Page shares a little bit of information about the wearable robot hand that has been designed to help people who have lost function of their hands. Despite there being approximately 300,000 people in the U.S. who have scleroderma, it seems that…
Invisible illnesses are conditions patients have that are not obvious when looking at them. Often people with an invisible illness face a lot of prejudice; others accuse them of faking, lying or exaggerating their illness. People just don’t fully understand what patients with invisible illnesses are going through.
https://vimeo.com/179459256 In this video from The MFA Companies, the CEO of the Scleroderma Foundation, Robert Riggs, talks a little about what the organization does for its members. He explains that the non-profit sector is growing and becoming one of the biggest sectors in the workforce. Chemotherapy isn’t just…
Living with scleroderma is tough, both physically and mentally. Diagnosed with systemic scleroderma at six years old, Bailey Schwartz shares what it was like growing up with the disease and how difficult it was for her parents, who were told that it was unlikely she would live to see her seventh…
Get regular updates to your inbox.