We need to breathe to stay alive. For some of us, this process is simple and we don’t think too much about it. For others, it’s a constant struggle that requires a lot of concentration and effort. For all of us, it’s important we’re aware that there’s a right—and wrong—way…
It can sometimes be a challenge to look on the bright side when you have a chronic illness, but spending time doing things that make you happy will help keep depression at bay, help you come to terms with your illness and begin enjoying life again. To help you feel happier, we’ve…
We only get one set of lungs so it’s imperative that we look after them. This is even more important with diseases that directly affect the lungs as it could help slow down its progression and ease the symptoms.  To help you take the best possible care of your lungs, we’ve put together a list…
Many people with scleroderma suffer from neuropathy and Raynaud’s in the winter. In this video from Rainbow in Bloom, the vlogger shares some of her hacks for coping with the cold winter weather and avoiding some of the symptoms of scleroderma-associated conditions. Read about seven common…
In this video from Demystifying Medicine, various medical experts talk about different aspects of scleroderma care at the Hamilton Scleroderma Group Patient Education Forum held on November 29, 2016. Scleroderma patients share their concerns in an Australian study. Find out more here. Some of the topics covered by…
February 28 is international Rare Disease Day, a day dedicated to raising public awareness of a myriad of diseases that many people know very little (if anything) about. One of the day’s main goals is to highlight the difficulties patients of rare diseases face in terms of diagnosis, treatment, and everyday…
This CBS Los Angeles video shares Kristine Cruz-Munda’s story. Though Kristine often receives compliments from strangers about her glowing skin, her skin is glowing is because her body overproduces collagen. Kristine has scleroderma. Read about the town that is rallying around its police chief who has…
Autoimmune diseases and chronic fatigue go hand in hand, as anyone with lupus, scleroderma, multiple sclerosis, fibromyalgia, IBD (and a host more) will testify. Chronic fatigue affects daily life and your ability to go about your business. It’s incredibly debilitating and yet, very misunderstood by those who don’t suffer from it. We’ve put…
A recent Australian study of 30 scleroderma patients revealed a list of some of the things they are most concerned about. Scleroderma patient Crystal shares the reality of living with the disease. When interviewed, patients mentioned being worried about the body changes scleroderma inflicts and how they would cope, along…
Once you have been diagnosed with scleroderma you will probably be referred to a rheumatologist for your ongoing treatment. You may also need to see other specialists since scleroderma can affect many different areas of the body. Town rallies around police chief with scleroderma. Find out more here. According to the Mayo Clinic,…
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