We know dealing with scleroderma sometimes feels like an uphill battle, both for the patients and the caregivers. You feel like you’re not doing enough or as if the disease is taking up all your time and attention. To help you on your journey, we’ve gathered a few quotes we…
Eating a healthy, balanced diet is essential for everyone, but for those living with a chronic lung condition, it is even more important to eat well. The food and drinks we consume can help us achieve better overall health and the nutrients can help protect the lungs against infection. MORE: Six …
Coping with a chronic illness is challenging, both physically and emotionally. Often the illness can change the way we look, making us feel self-conscious or embarrassed. This is not helped by people commenting on physical changes like weight gain or loss, or other body or facial changes. MORE: Find out some of the…
The Beverly Wilshire Hotel in L.A. played host to Bob Saget’s annual “Cool Comedy, Hot Cuisine” fundraiser for the Scleroderma Research Foundation. MORE: How Bob Saget became involved with scleroderma According to variety.com, in addition to raising awareness and much-needed funds for scleroderma, the event also offered an opportunity…
Scleroderma is an autoimmune disease which causes hardening of the skin. This can result in a loss of mobility, and in some extreme cases can affect internal organs. Scleroderma.org functions as a sounding board for patients and carers to share their own experiences with the disease. 1. Amanda’s Story…
Chicago-based writer and Scleroderma News columnist Lisa Goodman-Helfand was just 10 years old when she was diagnosed with the autoimmune disease scleroderma. At the time, and throughout her childhood and adolescence, her parents played down the seriousness of the disease, hoping to protect her. MORE: How serious…
You may think the summer months offer some respite to those who suffer from Raynaud’s syndrome but the warmer months can bring their own set of problems. Many offices, shopping malls, and other public spaces turn on the air conditioning in the warmer weather, which is great for helping you cool…
We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it is even more important to look after these vital organs as best we can. The Rush University Medical Center has some…
Sine sclerosis, which is also known as sine scleroderma or systemic sclerosis sine scleroderma (ssSSc), is an extremely rare type of scleroderma. MORE: Research is the focus of Rare Disease Day 2017 Unlike “regular” scleroderma, in sine sclerosis the buildup of fibrosis occurs not on the skin but in one or more internal organs,…
In honor of Scleroderma Awareness Month, we’re sharing some of our favourite scleroderma books. 1. “The Scleroderma Book: A Guide for Patients and Families” by Maureen D. Mayes This is the book to…
Get regular updates to your inbox.