The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through training and education. For a second year, the #RAREis Scholarship Fund — supported by Horizon Therapeutics – will award 35 one-time scholarships, each…
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The Scleroderma Foundation has awarded eight research grants for projects seeking to advance personalized medicine, lab-grown skin, new therapeutic targets, and more, in the field of scleroderma research. “The proposals from these scientists received the highest ranking from the Peer Review committee for quality of scientific design and…
Low levels of the galectin-10 protein (Gal-10) in scleroderma patients associate with inflammation and vascular changes in the lungs, leading to pulmonary arterial hypertension (PAH). This finding, from a recent study, provides the first evidence that GAL-10 may play a role in scleroderma. The study, “A…
Using a laptop, a computer-based machine learning tool was able to distinguish, with 95% accuracy, normal skin images from those collected from people with systemic sclerosis (SSc), a study demonstrated. This tool has the potential to rapidly diagnose SSc and to accurately classify the extent of…
CT scans show that Actemra (tocilizumab) can prevent lung disease in patients with systemic scleroderma if detected early enough, an analysis of Phase 3 trial data reported. These findings support the use of CT scans at…
As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how expensive — in terms of direct and indirect costs across rare disease populations — might still come as a surprise: almost…
The Anna Belle Carter Memorial Foundation (ABCMF) is offering scholarships to students living with scleroderma and their siblings who remain under the care of their parents and guardians. Recipients can apply their ABCMF scholarships toward undergraduate degrees, initial graduate degrees, or certifications at accredited colleges, universities, and…
Chronic pain and impairment of the autonomic nervous system — which controls internal organs and regulates body processes like heart rate, blood pressure, digestion, and respiration — affect sleep and physical functioning in people with scleroderma, which in turn can negatively affect their quality of…
CAN10, — Cantargia’s experimental therapy for scleroderma and myocarditis, or inflammation of the heart muscle — appears safe and effective at reducing inflammation and myocarditis in preclinical studies. The findings support plans to develop CAN10 for the treatment of these two conditions. “With preclinical proof of concept in…
Oral treatment with C21 restored hand temperature by improving blood flow in people with Raynaud’s phenomenon secondary to scleroderma, top-line data from a Phase 2 clinical trial show. “The results of the phase II study show that C21 can directly increase blood flow in fibrotic tissue,” Carl-Johan Dalsgaard,…
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