Yes, scleroderma certainly has affected my self-esteem in many ways. But help is at hand! This weekend there was a big sale at our local “everything” store. You know those stores, the ones that have all manner of household items, from computers to washing machines. We went to buy a new bed…
Stretch marks, belly flab, a double C-section scar, dark circles under my eyes for the next 18 years: the postpartum party gifts I was expecting as I was wheeled in for a scheduled C-section in 2006. It wasn’t my first rodeo: I’d had a C-section three years prior and, as…
October is Raynaud’s Awareness Month. However, for Raynaud’s patients, everyday, whatever the month, is a Raynaud’s day. There is no cure. Raynaud’s is the constriction of blood vessels in response to a decrease in temperature, and/or stress. This narrowing of the blood vessels can be extremely painful,…
This week my husband Max surprised me with a day trip to Akaroa — he must have read my last column! Outings such as this can be big undertakings for the chronically unwell. As I began to plan what was needed…
Flower arrangements shaped like ice cream sundaes, new pajamas, stuffed animals, books, bracelets, and countless other trinkets. These are the gifts I remember receiving during the three-day hospital stay that followed my dermatologist’s diagnosis of juvenile scleroderma. But the fun didn’t stop with all the gifts! Oh, no way! My roommate and…
It seems to me that managing Systemic Scleroderma is a battle that occurs daily in order to balance life and survive. Should I bother to do that laundry that’s been piling up, or should I rest? (Hmm, what’s more important: Wearing clean undies or being well enough to function?) Do…
Editor’s Note: In Lisa Goodman-Helfand’s debut article for her column “Comfortable in My Thick Skin,” she tells her own scleroderma diagnosis story. Her experience with the disease began at age 10, when little was understood about scleroderma. Read about the start of her journey here. We’ve all experienced pivotal moments that are forever…
The skin is the largest organ in the body and, more often than not, will be affected by scleroderma, as the name “sclero” — thickening — and “derma” — skin — implies. The exceptions are a SINE scleroderma diagnosis, and a limited scleroderma diagnosis, both of which could present…
Social media is an intriguing thing, isn’t it? It can be wonderful to have sites such as Scleroderma News at our fingertips, and I do believe the internet is a platform that can provide encouragement, the latest information, and a sense of community. However, one pitfall of social media that…
Hello, and welcome to my ordinary girl column. This is my very first piece of writing, so it makes sense to introduce myself and “set the scene” for what I hope will be a useful and helpful read for those interested. First, it’s been three years since I was diagnosed…
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