Chronically Me – a Column by Amy Baker

Chronically Me

Amy resides with her amazing son and three crazy pups in Williamsburg, Virginia — the colonial capital of the United States. She has an older son whom she repeatedly guilt trips to come home. From 2016 to 2017, Amy was diagnosed with multiple chronic autoimmune diseases and illnesses. Her column, “Chronically Me,” will detail her journey from humble beginnings as a human pin cushion to the fabulous, ridiculous hot mess she is today! Her desire is to focus on humor and levity amid life-changing illnesses.

What to Do When Scleroderma Steals Our Energy

Living with scleroderma fatigue is unquestionably a roller coaster ride. One day I’ll be cleaning the house and taking care of my responsibilities, and the next, I’ll be under a blanket, recovering from taking care of those same responsibilities. The energy I had the previous day will be…

The Pros and Cons of Pain Relief Medications

Chronic pain is unfortunately a hallmark symptom of scleroderma. Before my autoimmune journey started, I had chronic pain in my shoulder from injuries sustained in a car accident years earlier. I thought I had a “shoulder up” on living with pain. Ba dum tss. However, I had been unaware of…

My Top 7 Scleroderma Self-care Items

When dealing with scleroderma, some things are necessities. Following are the seven must-have items that best help me to manage symptoms and practice the best self-care possible. 1. Heating pad I need my heating pad. I keep one on the couch. Yes, old lady business right here, but the body…

Did Chronic Stress Cause My Scleroderma?

Because no one else in my family had scleroderma, I’ve often wondered where I procured this delightful autoimmune disease. Scleroderma is the gift that keeps on giving, something I wouldn’t wish on anyone. I wonder if there’s a way I can return it, maybe for an in-store credit or a…

The Challenges of Dating With Scleroderma

Dating in general is hard. You swipe right, swipe left, move up and down, or something like that. Maybe you even do the hokeypokey. And online dating? No way, no how. Dating with a chronic illness like scleroderma is exponentially more challenging and terrifying. It’s like going to a carnival…

Parenting With Chronic Illness Is Hard — So I Lie

“Hey, Mom, can you play with me?” my son, with his boundless energy, asks me enthusiastically, his eyes brimming with excitement. My heart is whole, and for today, I am still his favorite play buddy. Anyone with a chronic, debilitating illness will understand the following few words. “Sure, honey,…