Last year, I celebrated the 21st anniversary of my initial diagnosis of systemic scleroderma. Well, it wasn’t really a celebration,…
Articles by Amy Gietzen
Ever since I was a child, my parents fostered in me a solid work ethic and a refusal to quit.
Over 20 years ago, I was introduced to scleroderma at the tender age of 19. Our introduction was brief and…
Have you ever met someone and felt like the stars were aligned and everything was right in the universe? That’s…
Twenty years. That’s how long I’ve been living with scleroderma. That’s half of my adult life! Over the years, I’ve…
I never was the girl who aspired to be a wife and have children. That lifestyle was never on my…
I can’t breathe, literally! At times I feel like I’m drowning in my own body. Living with scleroderma can be…
When people learn that I have scleroderma, they tend to react in one of two ways. Some offer pity…
Eating is a sacred ritual in my life. I live for the aroma of freshly baked rosemary bread or the…
I like to refer to myself as a candy-coated treat: a hard shell on the outside with a soft, gooey…