World Scleroderma Day: Scleroderma Will Not Take My Smile!

This video from the Federation of European Scleroderma Association, in honor of World Scleroderma Day on June 29, features people in a staring competition to see who laughs first. Half of the participants have scleroderma and the message of the film is very simple, “Scleroderma will not take my smile!”.

MORE: Nicola Whitehill profiles scleroderma patients around the world for Scleroderma Awareness Month

World Scleroderma Day is inviting people from all over the world who live with the condition to post a picture or video of themselves smiling and laughing on social media, using the hashtag #ScleroSmile. The hope is that these photos will help raise the profile of the disease and help non-profit organizations put pressure on governments around the world to do more to support research and improve care for those with scleroderma.

MORE: Scleroderma Awareness Month: Learn more about the Scleroderma and Fibrosis Research Enhancement Act.

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

One comment

  1. ellen says:

    Wow, that’s almost cruel. Scleroderma HAS taken my smile, literally. My mouth has gotten so small, and the skin and muscles of my face so tight, that it just isn’t possible for me to actually smile, no matter how happy or friendly I may be feeling. This inability to express warm, positive emotions is one of the most troublesome aspects of this illness. It seriously impairs my interactions with other people — they tend to treat me like a cranky sourpuss, cause that’s how I look.

    Laughing is also a problem. The last time I saw something so funny that it had me laughing uncontrollably, my lips were sore and cracked for days from the stretching, and it gave me a few days of heartburn pain, too.

    Impairment of normal facial expression is a devastating and little recognized consequence of scleroderma. The intent behind this video is lovely, but it seriously misses the mark.

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