7 Facts About Scleroderma-Related PAH


Scleroderma (SSc) is a rare but progressive autoimmune disease that mainly affects women between the ages of 20 and 50, although men and children can also develop the disease. Many patients who have scleroderma also develop pulmonary arterial hypertension (PAH).

1. According to the Scleroderma Foundation, there are an estimated 300,000 scleroderma patients in the U.S.

Three possible risks for scleroderma. Read about them here.

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  1. Timothy says:

    Blood testing is best way to see if there is an active autoimmune disease. I go to my Rheumatologist, but your regular Doctor can order the blood test also. If it comes back positive for say SCL-70 then you will need a Rheumatologist who has knowledge in condition the test showed maybe an issue, They may want to observe you for awhile before making suggestions for treatment. All you can do is study and and make yourself familiar so you can be interactive in treatment, which with Scleroderma it helps to have as much knowledge as you can unless you have a great Doctor as many are lost on the over all picture, and it is complex condition and just don’t fit in well with the modern day 15-30 minute time frame you have to explain all your conditions. Today unless it is a hometown Doctor who remembers you well, many doctors will forget you, until they read your chart 10 minutes before your next appointment. Knowing your own treatment can advance the first ten minutes of the appointment so each time some conclusions can be made, and your not Moon walking each time.

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