Living with Scleroderma

Recent Posts

• Finding the ‘Goldilocks zone’ to manage scleroderma, Raynaud’s
• Study of CAR T-cell therapy rese-cel in scleroderma enrolling in US
• Ofev effectiveness, safety seen over 3-year SENSCIS extension trial
• Phase 1 trial of CAR T-cell therapy likely to open soon to SSc patients
• Focus of NORD study: Rare disease community’s lived experiences
• Low NK cell levels aid PAH diagnosis in people with SSc: Study
• Poor sleep in scleroderma linked to inadequate sleep hygiene: Study
• Is it normal aging, or is it related to my scleroderma?
• SSc autoantibodies can alter disease course, may affect clinical trials
• Immunosuppressants may help treat scleroderma with heart involvement