Living with Scleroderma

Recent Posts

• Why those of us with scleroderma need patient-centered care
• Sex differences confirmed in SSc, with 5 times higher risk for women
• Exosome-based therapy eases skin scarring in scleroderma mice: Study
• ALLO-329 gets FDA fast track designation for diffuse scleroderma
• Finding the ‘Goldilocks zone’ to manage scleroderma, Raynaud’s
• Study of CAR T-cell therapy rese-cel in scleroderma enrolling in US
• Ofev effectiveness, safety seen over 3-year SENSCIS extension trial
• Phase 1 trial of CAR T-cell therapy likely to open soon to SSc patients
• Focus of NORD study: Rare disease community’s lived experiences
• Low NK cell levels aid PAH diagnosis in people with SSc: Study