Feeling Comfortable With a Feeding Tube in Public

Feeding tubes are a necessary evil for many people with chronic illnesses such as scleroderma or inflammatory bowel disease. It can take patients a while to feel comfortable in public and begin to be OK with the stares and questions that it may prompt from strangers.

Find out about sine scleroderma and how it differs from regular scleroderma.

Chanel White regularly blogs for The Mighty, and in one of her articles, she talks about her need for a 24-hour food tube due to complications with scleroderma. Chanel has had nine months to come to terms with the device and the unwanted attention it brings. She describes the shame and embarrassment she felt each time she left the house until a kind remark from a passerby did something to change her whole outlook on the piece of tubing that kept her alive.

She no longer tries to hide her tube with clothing and medical tape, she now wears it with pride, it is an accessory that is as much a part of her as the outfit or jewelry she chooses to wear each day. Find out more about Chanel’s journey with her feeding tube here. 

Learn more about muscle, joint and nerve pain in scleroderma patients. 

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.